Stomach tube for life: Stomach tube for... - PSP Association

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Stomach tube for life

Espink50 profile image
9 Replies

Stomach tube for feeding when the time comes or not?

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Espink50 profile image
Espink50
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9 Replies
Dadshelper profile image
Dadshelper

That should be a decision left to the person. If that person is non-communative then hopefully this possibility was discussed and whatever was decided should be followed, in my opinion.

Ron

NannaB profile image
NannaB

I agree with Ron. For my husband (and me) it was a good thing which improved the condition of his body, enabled us to have outings until nearly the end, gave him a pain free, infection free, medication free death. It was his decision to have the PEG fitted and his decision to stop being fed 10 months later.

XxxX

kenh1 profile image
kenh1

I would suggest you look at the related posts. I have just had a look myself and in them there is everything you need to know. I was greatly helped by them when my wife was given a feeding tube. Best wishes. Ken.

PDDJED profile image
PDDJED

I would get one until it’s needed. It sounds like you are planning to get one in advance?

Inarticulate profile image
Inarticulate

Agree with Dadshelper. We have had the discussion with Dad and a Palliative Care team to ensure Dad’s wishes are fully met when it comes to the PEG.

AJK2001 profile image
AJK2001

Very personal decision to make but worth bearing in mind the outcome has a better likelihood of being positive if done whilst the patient is still in fairly good health.

Tippyleaf profile image
Tippyleaf

Such a personal decision - no Right or wrong. Lots of previous posts will give you food for thought forgive the pun!’

My husband chose not too and maintained that decision throughout. But others have had positive benefits by a feeding tube

Love Tippy

Wifey4U profile image
Wifey4U in reply toTippyleaf

Omg why am I seeing this NOW? My husband passed away in hospice when a feeding tube was refused. He wanted comfort care only as set out in his medical directive. The choice was either override his directive or watch him suffer for days (he could not swallow anything and had pneumonia from aspiration) After days on various antibiotics he was discharged to hospice. He is now at peace but I will never be.....he was my husband for 51 years, we shared everything including our day to day fight when he became ill with this nightmare called PSP.

I am so angry with the healthcare he received, the mystery toxin ??? that could have come from our water???Food industry??? Work exposure??? Genetic predisposition ??? We were totally at the mercy of a terrible system and God help anyone who gets sick and turns to “healthcare” in this country.

Birdman34265 profile image
Birdman34265

Its a hard one to make , having a peg or not , Kathy decided not to have

one fitted , right now as she has seizures more often ,when she is

unresponsive ,no feeding,no communication .Also it's down to quality

of life ,she has days when she can be fed and make a sound or give thumbs up to questions asked,this is year 5. Its a decision you will have to make yourself ...

Peter

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