co-careldopa

[acorneater]

My wife is taking co-careldopa for her PSP but I am not sure she is getting any positive results.Is anyone else using this drug and finding it helps?

[Hidden]

Carbidopa / Levodopa may or may not work for a while. Larry tried it. It didn’t do anything. If she isn’t responding to it she probably won’t.

[Helen119]

Yes my husband takes that it is also called sinimet, he’s been on it since June last year along with Baclofen, I don’t know if it helps or not, I suppose only way to find out is to stop it xxx

[SewBears]

The first 3 or 4 days on the drug all my hubby did was sleep. Around day 5 he started to perk up and move around better. His gait improved and it was easier for him to bend at the waist. He’s been taking it for 5 weeks now and I think that it is helping with his stiffness. He seems to be in a better mood because his body is more relaxed. Prior to Carbidopa hubby experienced headaches and he was taking Tylenol. His headaches are less frequent. I thought for awhile that the drug was causing him to be more confused, but even that has tapered off. He’s still confused and word finding is still an issue, but I don’t think that this is a side effect from the drug and that the confusion is because of the disease (CBD).

His doctor said if the drug helps then hubby has Parkinsonism traits but it doesn’t mean that he has Parkinson’s. If the drug doesn’t work then he said we’d try something else but he didn’t say what. It’s an experiment and I think it’s helping. I’m hoping to keep the same dosage because I understand that they can develop a tolerance and that after awhile it doesn’t work anymore.

How long has your wife been trying the drug? If she’s been taking it more than 5 days with no improvement then you should probably consult with her doctor.

I hope this helps.

Xoxo from I SewBears

[acorneater in reply to SewBears]

Thanks for your reply.She has been taking it for months now without any noticeable improvement in my opinion.But because she is so obsessive about her medication she will not stop taking anything unless advised by medical people.

[Inparadise]

My husband’s neurologist put him on this at first to rule out Parkinson’s. After eight weeks, he had no relief from his symptoms, so the medication was discontinued. Referred to Dr Irene Litvan at UCSD, who reconfirmed DX of PSP.

[Bhakthan]

Dopamine tablets relax stiff muscles. PSP is not helped.

[Aprilfool20]

I have cbd and have been on Madopar for about 5months and it has definitely improved my movement. I also have less problem with eyes and ‘ foggy’ brain. However, I still have balance problems. Even so,it has enabled me to get around the house without my stick and along with the Sertraline for depression, I have more motivation to do things. It did take about 8-10 weeks to really kick in and I’m on 4 100/25 a day. Best wishes,Jayne

[acorneater in reply to Aprilfool20]

Hi Jayne,that really sounds encouraging ,I am going to speak to her doctor about Madopar and pass your information onto her support group.Thank you so much,Acorneater.

[Aprilfool20]

Hope you get some positivity. I don’t know how long this will last but will make the most of it while it’s good. And the better weather is coming. Does your wife get out? I have a rollator and it’s a godsend now the medication plays its part. Also I cannot stress more strongly the benefits of exercise and keeping mobile-even if it’s just a walk up the garden and back. Very best wishes to you both,Jx

[acorneater in reply to Aprilfool20]

Sadly I can't motivate her to exercise apart from a couple of times a month when she attends Parkinson exercise groups.I have just got off the phone from speaking to her G.P who has agreed to try her on Madopar instead of co-careldopa, so it's fingers crossed.

Thanks again,Acorneater.

[SewBears in reply to acorneater]

That’s encouraging. My fingers are crossed that Madopar will be the answer for you and your wife.

Have you looked into having a physical therapist come to your home to help her with some exercise? Depending on your insurance plan it might be covered? Just a thought.

Xoxo from I SewBears

[acorneater in reply to SewBears]

Thanks SewBears it's certainly something else to consider.We are having some major works done at home at the moment,so when everything has calmed down I can devote more time to all the important things.Acorneaterxx