Sadness

[ncgardener799]

Has anyone had any experience with antidepressants to help with the challenges of sadness and loss of abilities associated with PSP. Thank you.

[raincitygirl]

Hello ncg;

My husband had CBD (very close to psp) and when the disappointment and frustration started to get to him, we started him on an SSRI. That was enough to help him alot. It didnt change his deep disappointment but he was more balanced in mood - even laughing at the tv!

Read the recent string "Desperate" by Ruth1921: there are lots of members who've found anti depressants to be helpful with no harmful side effects.

Good luck! XX

Anne G.

[ncgardener799 in reply to raincitygirl]

Hi Anne, Thank you so much for your response . My husbands Dr has suggested an antidepressant, which we will give a try. He is so sensitive to medications I am always apprehensive of the side effects that might make matters worse. But it is time to try and help him live as fully as possible at this stage. He has not yet been officially diagnosed , so we are still in search mode, but PSP has been mentioned as a possibility. Do you know the name of the particular SSRI that was helpful?

I am technology challenged, HA HA , so not sure how to access the " Desperate string" from Ruth 1921 that you mentioned? Can you give me some instructions on that process, Thank you again , Pat K

[honjen43 in reply to ncgardener799]

Hi Pat, there is a search function on this page.

At the top righthand side there is a magnifying glass symbol (next to face symbol). Mouse click lick or touch it on phone or tablet and a long box will open alongside. Type in Desperate and touch the search symbol again. If you then look below on the page by scrolling into it you will find there is a list of posts headed "Desperate". When I looked Ruth1921 was first. Mouse click or touch on phone or tablet to open the Desperate post. You will then be able to read all the answers too.

Hope this helps

Hugs

Jen xxx

[LuisRodicioRodicio]

Hi ncgardener799!

The PSP manifests itself in a similar but different way in each patient.

Our experiences are:

This March marks the 7th anniversary since my wife presented the first specific PSP-RS symptom.

For more than 4 years and as directed by a psychiatrist, she is taking a "Sertraline 50" pill every morning (with the breakfast) with good results in general and without side effects. Sertraline 50 takes a while to show its effects.

For more than 4 years and at dinner one pill of Lorazepan 1 mg was administered with good results.

For some time ago, before giving dinner and with the approval of the doctor we give a dose of 6 mg of CBDOil (LOVE CBD-Entourage) with good results regarding anxiety and appetite.

Hoping to be useful. Hugs and luck.

Luis

[ncgardener799 in reply to LuisRodicioRodicio]

Hi Luis, I am looking into CBD and CBG oil for my husband. Are you in the US? He takes Ritalin which is a stimulant medication to help with some energy, it only lasts a few hours-but he gets to do a few things he enjoys by taking the medication. Thanks for sharing information. Pat

[LuisRodicioRodicio in reply to ncgardener799]

Hi ncgardener799!

I am in Spain-U.E. I obtain the CBD Oil fron U.K.

Hugs and luck.

Luis

[HulaMoo2 in reply to ncgardener799]

I’m in the US and personally get mine from Lazarus oils. They offer a 50% discount for people with long term disabilities, veterans, and low income, and I’ve had pretty good results for my fibromyalgia and anxiety. I did try it with my dad who is the PSP sufferer and he didn’t think it did anything for him, but everyone responds a little differently.

[stay_calm]

Hi, ncgardener799!

I was prescribed generic Ativan (Lorazepam). It works! I would only take it when my anxiety and hysteria kicked in, and it worked within 15 minutes. My psychologist determined I was depressed and recommended an anti-depressant, which I didn't want, but she said it would stimulate my appetite ( I lost a lot of weight due to not being hungry so not eating). We decided on Zoloft. I checked with my niece, who is a Hospice nurse, and she assured me both were safe to take, as did my doctor and the pharmacist where I got it filled.

I have not become addicted to either medication, probably because I, too, didn't want to become addicted to MH meds.

Hope I have helped with your concern.

[Bereaved2017]

Hi NC gardener. I'm in Chesapeake VA and own a house on the OBX, on Hatteras Island. I have family in NC. I took care of my dear Daddy with PSP for the last 2 years of his life. In what part of NC are you located if you don't mind my asking?

[ncgardener799 in reply to Bereaved2017]

Hi Bereaved, We have lived in Wilmington NC for 20 years. Originally from the northern area of NJ.

[Bereaved2017]

Wilmington is a lovely town! My daughter almost went to UNCW. We went out there and it was a nice campus but I'm glad she ended up closer to home. I rent my house on HI and lived there for over 20 years, lots of people from NJ come to vacation. I was actually hoping you lived closer so I could help give you face to face encouragement in dealing with psp because it's so hard and sad. Thank you for your reply. You're in my prayers.

[ncgardener799 in reply to Bereaved2017]

Hi Bereaved 2017. My name is Pat. My husbands name is Chip. Would you like to share your name ? Sorry to hear you lost your father. How old was he and how long did he have PSP?

Thanks for the encouragement-my husband has not been officially diagnosed yet but he has many of the symptoms, but no falling as of yet. We first noticed changes 3 1/2 years ago and have been seeing Drs ever since. On Monday he is seeing a movement disorder neurologist, its his second visit and she is the one who mentioned possibly PSP 6 months ago. I welcome any advise others have to offer. So far we are coping as well as possible with whatever this disorder is. Thank you for prayers