Posts - PSP Association | HealthUnlocked

PSP Association

9,568 members • 11,525 posts

All posts for August 2018

PSP: To do what's medically recommended or respect my mother's wishes? Advice needed.

Hi Again, I am in need of advice. My mother has PSP and is now having trouble swallowing even soup. She's requested a regular solid diet rather than mince...

Hi Again, I am in need of advice. My mother has PSP and is now having trouble...

Callunas

•6 years ago

14 Replies

Bad Cough

My husband has a terrible cough. He's had a chest X-ray and it's not his heart or pneumonia. Could this be caused by his PSP?

My husband has a terrible cough. He's had a chest X-ray and it's not his heart ...

Shouldice

•6 years ago

12 Replies

A little distraction

Friends, I find it difficult to read the heartbreaking posts that I get from my daily digest. I love the occasional ‘normal life’ posts (like the humerous...

Friends, I find it difficult to read the heartbreaking posts that I get from my ...

Beads0122

•6 years ago

20 Replies

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The 'legal limit' of Social Care - A letter to Social Services.

Hi folks Just me doing what I do here. As most of us know there is a line which defines who has responsibility for care between the Social Services and the...

Hi folks Just me doing what I do here. As most of us know there is a line which ...

Kevin_1

•6 years ago

13 Replies

Please Advise- will not sit on the toilet

Please help. Joe is in his 5th year of CBD. Left side weak. Can't use both hands except to hold spoon to still feed himself. I got sciatica attack 3 weeks ago...

Please help. Joe is in his 5th year of CBD. Left side weak. Can't use both hands...

Hidden

•6 years ago

9 Replies

Corticobasal Syndrome

Where did you get diagnosed?

Hionarock1

•6 years ago

2 Replies

Corticobasal syndrome

My wife was diagnosed with CBD In 2015… Movements have become progressively more difficult… Spasms and severe pain on the affected side are very difficult to...

My wife was diagnosed with CBD In 2015… Movements have become progressively more...

Hionarock1

•6 years ago

4 Replies

Advice please re CBD right hand lean/rigidity

Hi Everyone. Well I had my hip op and came home Saturday. Things are going ok apart from a swollen leg and the new bungalow is an assett for me. Nigel was...

Hi Everyone. Well I had my hip op and came home Saturday. Things are going ok ap...

AliBee1

•6 years ago

9 Replies

Funding problems - why am I even surprised!

My mum has now been in hospital for 6weeks. She was diagnosed with PSP in the first week so she is in the nations army of bed blockers! The consultant...

My mum has now been in hospital for 6weeks. She was diagnosed with PSP in the fi...

Denisejoy1

•6 years ago

7 Replies

Feeling Guilty: PSP at a distance.

Hello Everyone, It's taken me a long time to come to writing this post. I'm still not sure how to feel and it changes from day to day, moment to moment. My...

Hello Everyone, It's taken me a long time to come to writing this post. I'm st...

Callunas

•6 years ago

9 Replies

Wheelchair Chest Harness

Basil the Ba..... Strapped down

Javan

•6 years ago

13 Replies

Wheelchair Frontview

Same as last post!

Javan

•6 years ago

2 Replies

Wheelchair Sideview

Here is a photo as promised with one arm up. The young bag is here by the way

Javan

•6 years ago

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CBD!

Hi everyone looking to support a family member with any info you have on CBD. Whilst he hasn't been diagnosed with it yet, it heavily resembles his symptoms...

Hi everyone looking to support a family member with any info you have on CBD. Wh...

support_sister

•6 years ago

7 Replies

Update on our changes

Hello all, I have wanted to post lately for some reason, don't really have a question this time,just want to tell someone what is going on in our lives. As...

Hello all, I have wanted to post lately for some reason, don't really have a q...

Reidallison

•6 years ago

13 Replies

Cloud cuckoo land

Cannot believe less than a week ago I was contemplating a long haul flight with my husband!! We had 2 really good weeks ( reduced aggression, minimal...

Cannot believe less than a week ago I was contemplating a long haul flight with ...

Tippyleaf

•6 years ago

36 Replies

In need to rant!

Hi all Well I feel like I'm in a living nightmare Mum is still in the hospice, they wanted the bed back two weeks ago! Care at home can no longer be...

Hi all Well I feel like I'm in a living nightmare Mum is still in the hospice, ...

Spiralsparkle

•6 years ago

43 Replies

Prayers and love

It's been quite a while since I was in touch but have been unable to think clearly. It's now 13 weeks since my beloved TJ passed to a better place. Anywhere...

It's been quite a while since I was in touch but have been unable to think clear...

Caz49

•6 years ago

6 Replies

Neuro ophthalmologist visit

So, we went to see a neuro ophthalmologist last week. Mike was worried about not being able to see and we thought we might get some help. No such luck! We were...

So, we went to see a neuro ophthalmologist last week. Mike was worried about not...

Caro2132

•6 years ago

15 Replies

Thank you everyone

I wish to thank every one of you who posted condolences and words of comfort on my husband Terry's death. It has meant so very much to me that you took time...

I wish to thank every one of you who posted condolences and words of comfort on ...

terryswife

•6 years ago

7 Replies

CBD OIL- How to use?

My 57 years old sister is suffering from PSP. I came to know about CBD oil. Can someone tell me how to give the oil? thank you

My 57 years old sister is suffering from PSP. I came to know about CBD oil. Can ...

PSPCarer

•6 years ago

24 Replies

Neurologist visit, how it went

Firstly I would like to thank everyone who responded to my previous post about what to ask a Neurologist, it took a load of pressure off myself that actually...

Firstly I would like to thank everyone who responded to my previous post about w...

AJK2001

•6 years ago

8 Replies

CBD diagnosis and stages?

Hi, I joined this group 20 days ago and I can relate with many of your heartfelt stories. Thank you to everyone for posting. Questions and replies have helped...

Hi, I joined this group 20 days ago and I can relate with many of your heartfelt...

SewBears

•6 years ago

11 Replies

People have no idea...

Today I’ve just about had it. I’m physically and mentally wrecked from dealing with mom and her condition. Her behavior is so draining, it literally sucks the...

Today I’ve just about had it. I’m physically and mentally wrecked from dealing ...

Ettavb

•6 years ago

48 Replies

Downhill slide

Hello my friends. I haven't posted much because my husband has, up until now, been independent. Although he still is able to take care of himself, for which...

Hello my friends. I haven't posted much because my husband has, up until now, be...

Baytalon

•6 years ago

12 Replies

I need help finding the correct word for my body feeling like Jell-o . . .

I am going to the doctor next week and I don't think he will understand my definition of my new sensation . . . I feel like a bowl of Jell-o trying to walk on...

I am going to the doctor next week and I don't think he will understand my defin...

Motts

•6 years ago

20 Replies

Trouble accessing

Hi all, I am having much difficulty logging in to read posts. When I try to "read more" a screen comes up requesting me to log in using Facebook or google....

Hi all, I am having much difficulty logging in to read posts. When I try to "re...

Mikey12345

•6 years ago

10 Replies

Getting a confirmed diagnosis

My father has been treated for Parkinson's disease for a number of years but has not responded to to treatment and is degenerating rapidly. The local NHS trust...

My father has been treated for Parkinson's disease for a number of years but has...

Doncaster_Rover

•6 years ago

4 Replies

Feeling mean

Feeling so mean. We went out for lunch with friends and, as usual, my beloved chose to sit at the end of the table. With hearing issues I can understand why he...

Feeling so mean. We went out for lunch with friends and, as usual, my beloved ch...

JCRy

•6 years ago

25 Replies

SHOULD I PUT MYSELF I A HOME

My wife says yes and I say no. Her main reason is that of safty Because i am falling over more frequently she is scared that every time she...

My wife says yes and I say no. Her main reason is that of safty Because i ...

steph-02

•6 years ago

17 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2018

PSP: To do what's medically recommended or respect my mother's wishes? Advice needed.

Bad Cough

A little distraction

The 'legal limit' of Social Care - A letter to Social Services.

Please Advise- will not sit on the toilet

Corticobasal Syndrome

Corticobasal syndrome

Advice please re CBD right hand lean/rigidity

Funding problems - why am I even surprised!

Feeling Guilty: PSP at a distance.

Wheelchair Chest Harness

Wheelchair Frontview

Wheelchair Sideview

CBD!

Update on our changes

Cloud cuckoo land

In need to rant!

Prayers and love

Neuro ophthalmologist visit

Thank you everyone

CBD OIL- How to use?

Neurologist visit, how it went

CBD diagnosis and stages?

People have no idea...

Downhill slide

I need help finding the correct word for my body feeling like Jell-o . . .

Trouble accessing

Getting a confirmed diagnosis

Feeling mean

SHOULD I PUT MYSELF I A HOME

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive