It's been quite a while since I was in touch but have been unable to think clearly.
It's now 13 weeks since my beloved TJ passed to a better place. Anywhere would be better than what he was living here on earth.
I hope and pray that a treatment or preferably cure could be found sooner rather than later for this cruel, cruel disease.
We were really blessed to have the most caring, compassionate, competent and kind neurologist you could hope for during the last few months.
As TJ passed only after his diagnosis two months before his passing I'm in two minds as to whether it was best not to know earlier. Because of his fall which left him an incomplete quadriplegic his spinal cord injury masked most of the symptoms.
At first I was pleased I didn't know earlier but then again had I known maybe we could have ticked a few things off the bucket list.
These things go through my mind as well as thoughts as, did I do enough for him, could I have done more, did I tell him enough how much I loved him etc. This keeps me awake for hours on end.
Just writing this has helped me as I have tried to keep a lot of my thoughts to myself trying to stay strong for the family.
My love and prayers go with you all to help you through this horrid time.