Well I feel like I'm in a living nightmare
Mum is still in the hospice, they wanted the bed back two weeks ago! Care at home can no longer be fulfilled. We were using a combination of direct employed carers and an agency. Agency served notice and one of our carers quit.
Currently the council have 60 care packages to fulfill and the CCG have end of life patients needing care that cannot be provided. Apparently this is the worst it has ever been locally, I was told by them both in a meeting last week.
So that leaves my poor Mum being forced into a home against her wishes and my wishes. They all want her in a dementia unit to add more salt to the news.
It has all got very politically. CCG and social services in dispute over the CHC review so that has been halted again. Hospice won't fast track and Community matron can't go over their heads as Mum is in their care.
How I bitterly regret making the decision for her to go into the hospice. They actually haven't done anything that couldn't have been done at home in the end medication wise and I've actually had to complain a few times on the care she has been given. They seem fab for the cancer patients though.
The nearest hospice didn't have a bed so she had to go to the other site in the county which has left me driving a round trip of 45 miles a day. I'm more exhausted than when she was at home. The stress of all of this hasn't helped either.
Mum is worried and scared and just wants to come home. There isn't any good homes locally either, alot are reported by CQC as "require improvements".
Universire I keep asking for help......
Thanks for listening all. I had to spill that all out as I feel like losing my marbles.