Posts - PSP Association | HealthUnlocked

PSP Association

9,328 members • 11,387 posts

All posts for August 2018

Help md

Hi there my head has been feeling like there’s extra pressure and I’ve had a slight headache, I sort of feel like I’m walking on a cloud, I don’t know if...

Hi there my head has been feeling like there’s extra pressure and I’ve had a sl...

Loopyleigh123

•6 years ago

3 Replies

CBD oil. Kevin??

Hi Kevin can you give me the name of the company you got your new better CBD oil from please can’t find it in search Love and hugs Helen xx

Hi Kevin can you give me the name of the company you got your new better CBD oil...

Helen119

•6 years ago

2 Replies

Taking on the caregiving

I am going to be taking on my moms caregiving soon. My mom has CBD and is completely bed bound. She cannot speak or move herself. She is so rigid and stiff....

I am going to be taking on my moms caregiving soon. My mom has CBD and is compl...

Hidden

•6 years ago

15 Replies

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Any advice would be greatly appreciated

Hi, my name is Hillary. I am new to this page. My father in law was just diagnosed with PSP. At first, they thought it was Parkinson's but after the MRI, it...

Hi, my name is Hillary. I am new to this page. My father in law was just diagn...

psp2018

•6 years ago

10 Replies

Falling - Casualty and Liz's whacky humour.

I've got to share this. I had Liz home today and settled her onto the settee. I gave her a hug and then a cup of liquidised grapes diluted with apple juice....

I've got to share this. I had Liz home today and settled her onto the settee. I ...

Kevin_1

•6 years ago

52 Replies

Article on cramping

this was on the Parkinsons forum. it does mention a drug towards the end that may help...

this was on the Parkinsons forum. it does mention a drug towards the end that m...

daffodil48

•6 years ago

4 Replies

Holidays

Hello can you go abroad with a CBS diagnosis please ?

Hidden

•6 years ago

15 Replies

CBD

I'm new to this forum having been diagnosed with CBD in May 2018. A year ago I was fit and healthy with no medical condition then suddenly I got a tremor in my...

I'm new to this forum having been diagnosed with CBD in May 2018. A year ago I w...

Confusedandlost

•6 years ago

41 Replies

Facebook

Hello again my extended PSP family and friends. It suggested to me that I should post my Facebook author page for those of you who use it. Outside of the book,...

Hello again my extended PSP family and friends. It suggested to me that I should...

daddyt

•6 years ago

14 Replies

Toilet Booster

Has anyone on here had any experience with toilet booster seats that attach to the toilet, maybe with handles? Steve is beginning to have problems standing to...

Has anyone on here had any experience with toilet booster seats that attach to t...

Khartt

•6 years ago

6 Replies

Does anyone have experience with CHC private health budgets?

I last posted a few months ago when I was in the midst of a CHC application for my mum, which luckily was granted. My dad is essentially my mum's carer, but...

I last posted a few months ago when I was in the midst of a CHC application for ...

mattnkatsmum1

•6 years ago

19 Replies

Scared Newbie

My husband was just diagnosed with PSP three weeks ago. He didn’t catch the name of the disease and doesn’t want to know anything about it. All he knows is...

My husband was just diagnosed with PSP three weeks ago. He didn’t catch the name...

Cottingham

•6 years ago

39 Replies

The PSP Chronicles

My first published book... I'm elated. Tim

daddyt

•6 years ago

25 Replies

Travelling with CHC funding

My husband has recently been awarded CHC funding. He is originally from Malaysia and is desperate for one last trip to see Family - 5 of his siblings live...

My husband has recently been awarded CHC funding. He is originally from Malays...

Tippyleaf

•6 years ago

7 Replies

another painting

another painting to cheer us up

jmoffat

•6 years ago

11 Replies

Sides on beds

Kevin recently said in a post, "the only way they can manage risk is to keep her in bed with the sides up." I'm curious. In Australian care facilities this is...

Kevin recently said in a post, "the only way they can manage risk is to keep her...

nayook

•6 years ago

18 Replies

A very useful thread by our Kevin and his Liz.

I hope this works. With Kevin's approval I am posting link to a thread written by our Kevin and his wife Liz. It is very helpful I think to read about the...

I hope this works. With Kevin's approval I am posting link to a thread written b...

daffodil48

•6 years ago

11 Replies

Article on Hospice in US

this article talks about how, if you have dementia, you can get into hospice sooner than the 6 months left to live and the criteria they follow. Is PSP classed...

this article talks about how, if you have dementia, you can get into hospice soo...

daffodil48

•6 years ago

7 Replies

Aspiration pneumonia or is it another gift from psp

Doc did chest xray and blood work,waiting to hear.he is not coughing a lot but when he dose he just shudders and says it hurts.He would not finish his lunch...

Doc did chest xray and blood work,waiting to hear.he is not coughing a lot but w...

Hidden

•6 years ago

4 Replies

The best walker for those with PSP

Most walker require the user to grip on the levers in order to apply the brakes. Those with PSP and other neurological disorders require a walker that works...

Most walker require the user to grip on the levers in order to apply the brakes....

grafixapn

•6 years ago

1 Reply

The best walker for those with PSP

Most walker require the user to grip on the levers in order to apply the brakes. Those with PSP and other neurological disorders require a walker that works...

Most walker require the user to grip on the levers in order to apply the brakes....

grafixapn

•6 years ago

13 Replies

Help with mum

I’m in need of a bit of support and hopefully information. My mum is 79 and she was diagnosed with PSP in January 2016, she’d been showing symptoms for 2-3...

I’m in need of a bit of support and hopefully information. My mum is 79 and she ...

Curlycat

•6 years ago

13 Replies

Cbd

Has anyone been in the advanced stages of this disease and not had the speech or swallowing difficulties ??....I am just praying my mum won’t get these...thank...

Has anyone been in the advanced stages of this disease and not had the speech or...

Codd_family

•6 years ago

14 Replies

Council tax discounts

Yesterday I received a nice letter from the council to say that our council tax has been reduced by 25% back dated to 2013. I had applied months ago on the...

Yesterday I received a nice letter from the council to say that our council tax ...

kenh1

•6 years ago

9 Replies

toilet problems

my husband is constantly fretting about going for a number two. He said its just so messy. ive tried to reasure him we hv baby wipes. ive offered to help but...

my husband is constantly fretting about going for a number two. He said its just...

Kaka1234

•6 years ago

18 Replies

Advice on medical care

My wife qualified for CHC last December. Just recently there has been a shake up with the district nurses, different teams, new team leaders etc. For the first...

My wife qualified for CHC last December. Just recently there has been a shake up...

edgie

•6 years ago

3 Replies

Not such a good Sunday

Well one always knows with CBD or PSP that things can change overnight. My plans have gone sort of haywire. Nigel seized up this morning and was taken into...

Well one always knows with CBD or PSP that things can change overnight. My plans...

AliBee1

•6 years ago

13 Replies

My wife has PSP and there may not be a cure for PSP, but there is a drug that slows the progression

My Name is Andy and my wife has PSP. We belong to a user group in Phoenix, AZ USA, My wife is a doctor and has a PHD in the aging brain. I mention this as she...

My Name is Andy and my wife has PSP. We belong to a user group in Phoenix, AZ US...

andyniem

•6 years ago

27 Replies

Car door opening risk behaviour - a solution.

Hi folks In my last post on 'wilful' falling from the wheelchair it emerged quite a few of us also faced our loved one opening the car door whilst the car was...

Hi folks In my last post on 'wilful' falling from the wheelchair it emerged qui...

Kevin_1

•6 years ago

30 Replies

Still feeling totally inadequate

Despite both the chest infection and UTI having apparently cleared up we're still having problems. Ten days ago we ended up in A&E as Chris developed problems...

Despite both the chest infection and UTI having apparently cleared up we're stil...

AnneandChris

•6 years ago

18 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2018

Help md

CBD oil. Kevin??

Taking on the caregiving

Any advice would be greatly appreciated

Falling - Casualty and Liz's whacky humour.

Article on cramping

Holidays

CBD

Facebook

Toilet Booster

Does anyone have experience with CHC private health budgets?

Scared Newbie

The PSP Chronicles

Travelling with CHC funding

another painting

Sides on beds

A very useful thread by our Kevin and his Liz.

Article on Hospice in US

Aspiration pneumonia or is it another gift from psp

The best walker for those with PSP

The best walker for those with PSP

Help with mum

Cbd

Council tax discounts

toilet problems

Advice on medical care

Not such a good Sunday

My wife has PSP and there may not be a cure for PSP, but there is a drug that slows the progression

Car door opening risk behaviour - a solution.

Still feeling totally inadequate

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive