Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for August 2018

Good Luck Alibee!

A certain someone has had her hands full managing a house move, organizing home care for hubby and preparing for an operation!. Best wishes for a successful...

A certain someone has had her hands full managing a house move, organizing home ...

raincitygirl

•6 years ago

5 Replies

Toileting Aide

Came across this. It is probably very expensive, (they don't tell you on site) so I sent for a price quote. Medicare doesn't cover it but they said that some...

Came across this. It is probably very expensive, (they don't tell you on site) s...

daffodil48

•6 years ago

13 Replies

Help - I need a Neurologist/Specialist in PSP

How do I go about finding a Neurologist /Specialist in PSP? There are many Neurologist listed in my phone book but none give their specialties. I tried...

How do I go about finding a Neurologist /Specialist in PSP? There are many Neuro...

Motts

•6 years ago

23 Replies

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Seeing spiders

So last night my husband seemed fairly lucid. Our son helped him to the bed and then called out to me. When I reached the room, my husband was on the floor,...

So last night my husband seemed fairly lucid. Our son helped him to the bed and ...

-shelly26-

•6 years ago

28 Replies

Cbd symptoms

Hi all, mum is suffering from cbd, lots of symptoms progressing..ie, agitation, trouble getting to sleep, ocd, lots of pain in her arm and shoulder, loss of...

Hi all, mum is suffering from cbd, lots of symptoms progressing..ie, agitation,...

Codd_family

•6 years ago

10 Replies

The season for reversing

My Devon lanes are not known for their breadth . They meander snake narrow between high hedges and flower laden banks . As a driver you always keep a mental...

My Devon lanes are not known for their breadth . They meander snake narrow betwe...

Georgepa

•6 years ago

17 Replies

Waiting for the other shoe to drop.

In the last week Larry has gotten more wobbly on his feet pulling to his right. This pulling to the right has been going on for a while but the near falls are...

In the last week Larry has gotten more wobbly on his feet pulling to his right. ...

Hidden

•6 years ago

24 Replies

Messaging on this site

How do I message someone personally?

Boyce3600

•6 years ago

2 Replies

Hi jillannf6

Glad to see you are still reading our posts! You liked 2 of mine In the last couple of days! I have been away for a holiday and missed you and all our friends...

Glad to see you are still reading our posts! You liked 2 of mine In the last cou...

honjen43

•6 years ago

6 Replies

What do you ask the Neurologist?

Hi Have just been given a short notice appointment with our Neurologist for Monday, we only get to see him about every 10 months, so want to make the most of...

Hi Have just been given a short notice appointment with our Neurologist for Mond...

AJK2001

•6 years ago

37 Replies

PSP Clinic

We went for our first time yesterday to a PSP clinic in Dallas TX at UT Southwestern. (Their movement specialist diagnosed Steve back in Jan with PSP) Wasn't...

We went for our first time yesterday to a PSP clinic in Dallas TX at UT Southwes...

Khartt

•6 years ago

13 Replies

The PSP Chronicles - the Book

A warm hello to my extended PSP family. I haven't had great deal of time lately to join in on the discussions. The reason why... I've written and published a...

A warm hello to my extended PSP family. I haven't had great deal of time lately ...

daddyt

•6 years ago

21 Replies

Telling loved ones

Hello all My husband has a diagnosis of CBS. He is 55 and does not know. My son is 26 i do not know how to tell him. I am in such turmiol. He is just getting...

Hello all My husband has a diagnosis of CBS. He is 55 and does not know. My son...

Hidden

•6 years ago

39 Replies

Managing wilful falling risk in a wheelchair - Advice please?

Bother! A couple of days ago Liz undid her seatbelt and tried to stand. She fell, of course and got a knock on her head for her trouble. Luckily not severe. Of...

Bother! A couple of days ago Liz undid her seatbelt and tried to stand. She fell...

Kevin_1

•6 years ago

168 Replies

CHC Routine Update

Hi folks Just an update on CHC and whats going on https://mailchi.mp/91c8bca96862/test-how-will-i-afford-to-pay-for-my-care-305127?e=13f5026cb0 Cheers...

Hi folks Just an update on CHC and whats going on https://mailchi.mp/91c8bca96...

Kevin_1

•6 years ago

10 Replies

Another Fall!

Well I just got Ch into bed after one of the worst falls he has had. Again it is amazing that he did not break any bones or cuts, But one holy bump on the...

Well I just got Ch into bed after one of the worst falls he has had. Again it is...

crab2093

•6 years ago

13 Replies

Corticobasal ganglionic degeneration anyone?

Hi, My husband has been diagnosed with CBD and I do t seem to be seeing posts regarding it specifically. Does anyone have or know much about it? He seems to...

Hi, My husband has been diagnosed with CBD and I do t seem to be seeing posts re...

Patmimi

•6 years ago

19 Replies

Speech

I visited Dad on Sunday evening and had a decent time. It took a while to have a meaningful conversation but that has been the norm for a while. When I went...

I visited Dad on Sunday evening and had a decent time. It took a while to have...

Dadshelper

•6 years ago

9 Replies

CHC level of support given

Hi all For those of you who have been awarded CHC and use this within the home setting. Can I ask how much care you are allocated? E.g. personal care calls,...

Hi all For those of you who have been awarded CHC and use this within the home ...

Spiralsparkle

•6 years ago

34 Replies

Do I need to see things from another perspective?

My mom has PSP, and my dad was unable to cope with caring for her, and moved her into a care home in November 2016. They live in Ontario, Canada, so this is...

My mom has PSP, and my dad was unable to cope with caring for her, and moved her...

rloops

•6 years ago

11 Replies

Need help to get out my father from psp

My father it self a senior Doctor (GP) since 35 years and now from one year psp covered my father we need help and guidance related to psp asap plz respond...

My father it self a senior Doctor (GP) since 35 years and now from one year psp ...

Muneet

•6 years ago

2 Replies

Hospice consult

I have managed to get the nursing homes panties in a bunch. Oops, don’t really care. After all, I am my dads voice since PSP took that from him. I contacted...

I have managed to get the nursing homes panties in a bunch. Oops, don’t really c...

tlovins

•6 years ago

13 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2018

Good Luck Alibee!

Toileting Aide

Help - I need a Neurologist/Specialist in PSP

Seeing spiders

Cbd symptoms

The season for reversing

Waiting for the other shoe to drop.

Messaging on this site

Hi jillannf6

What do you ask the Neurologist?

PSP Clinic

The PSP Chronicles - the Book

Telling loved ones

Managing wilful falling risk in a wheelchair - Advice please?

CHC Routine Update

Another Fall!

Corticobasal ganglionic degeneration anyone?

Speech

CHC level of support given

Do I need to see things from another perspective?

Need help to get out my father from psp

Hospice consult

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive