Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for August 2018

Update on Mum

Hi After battling for weeks it came to crunch time and Mum being a political pawn between different services. It has been hell. I've had to stand my ground...

Hi After battling for weeks it came to crunch time and Mum being a political paw...

Spiralsparkle

•6 years ago

41 Replies

Treats to help with hydration

https://blog.thealzheimerssite.com/jelly-drops/?utm_source=glp&utm_medium=paid-affiliate

https://blog.thealzheimerssite.com/jelly-drops/?utm_source=glp&utm_medium=paid-a...

daffodil48

•6 years ago

4 Replies

Dropped eyelid

Yesterday my FIL rang to ask me to pop round as his eyelid had dropped. I got round and bless him he said " what do you think?" I could see it had dropped. He...

Yesterday my FIL rang to ask me to pop round as his eyelid had dropped. I got ro...

Pooches

•6 years ago

19 Replies

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Urination frequency/urge drug?

Hi all, I'm remembering a post discussing the two drugs used, usually in conjunction, to lessen the frequency of the trips to the bathroom. My mother is in...

Hi all, I'm remembering a post discussing the two drugs used, usually in conjun...

ABouquet

•6 years ago

19 Replies

PSP medical articles

Found a great site for information on PSP. Many articles written by post-graduates. Most is fairly easy to understand. I found it through the Mayo Clinic site....

Found a great site for information on PSP. Many articles written by post-graduat...

GmaDeb

•6 years ago

21 Replies

I Need Someone to Speak On

Hi, I need someone to speak on what should be done when there is the diagnosis of 'probable PSP'. I've written before of how it is like pulling teeth with my...

Hi, I need someone to speak on what should be done when there is the diagnosis ...

Boobe

•6 years ago

19 Replies

Another fever. Another infection?!

Visiting hospice nurse thought C. sounded "wet" when she came for the weekly visit yesterday. The groaning, humming, gurgling attempt to clear his throat...

Visiting hospice nurse thought C. sounded "wet" when she came for the weekly vis...

hubetsy

•6 years ago

15 Replies

Maladministered CHC application - seeking moral support & advice from anyone else who's experienced similar problems

I'm a "newbie" in dire need of moral support and any advice that can be offered. The problem I'm struggling with is CHC admin for my Mum; I'm happy about...

I'm a "newbie" in dire need of moral support and any advice that can be offered....

BattlingCHC

•6 years ago

9 Replies

CBD and hip and bed rails

Hi All. Thanks for helpful replies reference Nigel 'seizing up'. Although it was the middle of the night I immediately felt support. The Occupational Therapist...

Hi All. Thanks for helpful replies reference Nigel 'seizing up'. Although it was...

AliBee1

•6 years ago

25 Replies

Advice please

Hi I wondered if anyone's got any advice my left hand has been swollen about 6 weeks. I was given a glove to help with circulation to wear in bed at night but...

Hi I wondered if anyone's got any advice my left hand has been swollen about 6 w...

Mamapiggle

•6 years ago

3 Replies

PSP - Alternative medicine in Homepathy

My brother aged 74 is diagnosed as suffering from PSP. At present, as I understand there is no cure for PSP in Allopathy. I am thinking of Alternative medicine...

My brother aged 74 is diagnosed as suffering from PSP. At present, as I understa...

Hidden

•6 years ago

9 Replies

What we don't know

There are many resources out there explaining what PSP is and a lot of research being done in trying to find a magic pill that will not only stop the...

There are many resources out there explaining what PSP is and a lot of research ...

Keiko278

•6 years ago

8 Replies

Hospice Alliance Signs and symptoms of imminent death

http://www.hospicepatients.org/hospic60.html As with PSP the signs and symptoms can be different in individuals.

http://www.hospicepatients.org/hospic60.html As with PSP the signs and symptoms...

daffodil48

•6 years ago

7 Replies

Re hydration

Hi all Wondering if anyone has had experience of keeping their loved ones hydrated when they aren’t keeping any fluids down. Colin was fine this morning, had...

Hi all Wondering if anyone has had experience of keeping their loved ones hydrat...

Helen119

•6 years ago

13 Replies

Psp patient and sleep issue

Hi all, My mom is PSP patient approximately 12 years. Recently, she has screamed and groaned while her eyes closed during throughout the night. I do not know...

Hi all, My mom is PSP patient approximately 12 years. Recently, she has screamed...

Esra

•6 years ago

31 Replies

Nutrition Resources

Resources: Documentaries: Heal Foods Heal Fat, Sick and Nearly Dead Forks over Knives Rotten The Gut: Our Second Brain Books: Medical Medium by Anthony...

Resources: Documentaries: Heal Foods Heal Fat, Sick and Nearly Dead Forks ov...

Keiko278

•6 years ago

5 Replies

Research and Science

Hi All, My dad suffers from PSP and I myself was suffering from a variety of unexplained symptoms. I was determined to get to the bottom of what causes PSP...

Hi All, My dad suffers from PSP and I myself was suffering from a variety of un...

Keiko278

•6 years ago

23 Replies

What is going on with CBD? Another good lecture.

Again from a Cure PSP conference. This is a lecture which looks at CBS (CBD) the presenting symptoms and what is going on with the brain....

Again from a Cure PSP conference. This is a lecture which looks at CBS (CBD) the...

Kevin_1

•6 years ago

13 Replies

What is PSP?

This is a superb lecture by a neurologist at a Cure PSP Conference last year. ~I expect many here will have watched it, but maybe worth flagging up as it...

This is a superb lecture by a neurologist at a Cure PSP Conference last year. ~...

Kevin_1

•6 years ago

24 Replies

An article on patients seeing deceased loved ones before they themselves die.

https://www.usnews.com/news/healthiest-communities/articles/2018-07-07/near-death-seeing-dead-people-may-be-neither-rare-nor-eerie

https://www.usnews.com/news/healthiest-communities/articles/2018-07-07/near-deat...

daffodil48

•6 years ago

13 Replies

I think I might have PSP

Hi everyone This is my first post in the forum. I wanted to hear from people with PSP, as I believe I might have it. In April 2017 immediately after a week of...

Hi everyone This is my first post in the forum. I wanted to hear from people wi...

somerandomperson

•6 years ago

23 Replies

Assisted Living?

Hello, I joined this group to help my Mom who was recently diagnosed with this terrible disease. However, we have known this for about three years or so,...

Hello, I joined this group to help my Mom who was recently diagnosed with this ...

Malattia

•6 years ago

10 Replies

Notes on Dad

I've been keeping notes on dad, CBD, for just over 4 yrs, ever since he moved in with me. I started taking them so I'd remember things to bring up at doctor...

I've been keeping notes on dad, CBD, for just over 4 yrs, ever since he moved ...

Dadshelper

•6 years ago

7 Replies

New to CBD

Hi. My father in law has just been diagnosed with CBD and I want to know more about it. Also living with it and caring for someone with it. At the moment he is...

Hi. My father in law has just been diagnosed with CBD and I want to know more ab...

Pooches

•6 years ago

10 Replies

PSP vs. MsA

Hi Everyone, We initially thought my father had PSP but its Multi Symptom Atrophy (MSA). Are symptoms similar? They are both brain decorative diseases but I...

Hi Everyone, We initially thought my father had PSP but its Multi Symptom Atroph...

Ngakimnguyen

•6 years ago

5 Replies

Twisted bowel

My dad got rushed to A&E last night with twisted bowel. He having surgery today at 11 am. Has anyone had experience of this with their loved one. We have...

My dad got rushed to A&E last night with twisted bowel. He having surgery today ...

poppycat86

•6 years ago

2 Replies

My wife won’t eat

How can I get my wife to eat some food she is 53 and refuses to eat she keeps saying that it’s to late been to the doctor last week and he gave her tablets but...

How can I get my wife to eat some food she is 53 and refuses to eat she keeps sa...

Kingaroo

•6 years ago

8 Replies

Wish we could get an idea what stage dad is in (and how much longer he has)

I know I'm far from the only one that's frustrated as all get out by this disease, all the changes, and not knowing what's coming next. We know that the...

I know I'm far from the only one that's frustrated as all get out by this diseas...

Liz_L

•6 years ago

43 Replies

another painting and a book

thanks to Amazon, a Kindle version of my recent book 'modeling conflict and competition far from equilbrium' ISBN 978-620-2-31377-3 is now available for just...

thanks to Amazon, a Kindle version of my recent book 'modeling conflict and com...

jmoffat

•6 years ago

12 Replies

Agitation

Hi, mum is highly agitated and her ocd is getting that way too, she is saying things and being quite rude to me and siblings, ie calling us useless, her chest...

Hi, mum is highly agitated and her ocd is getting that way too, she is saying th...

Codd_family

•6 years ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for August 2018

Update on Mum

Treats to help with hydration

Dropped eyelid

Urination frequency/urge drug?

PSP medical articles

I Need Someone to Speak On

Another fever. Another infection?!

Maladministered CHC application - seeking moral support & advice from anyone else who's experienced similar problems

CBD and hip and bed rails

Advice please

PSP - Alternative medicine in Homepathy

What we don't know

Hospice Alliance Signs and symptoms of imminent death

Re hydration

Psp patient and sleep issue

Nutrition Resources

Research and Science

What is going on with CBD? Another good lecture.

What is PSP?

An article on patients seeing deceased loved ones before they themselves die.

I think I might have PSP

Assisted Living?

Notes on Dad

New to CBD

PSP vs. MsA

Twisted bowel

My wife won’t eat

Wish we could get an idea what stage dad is in (and how much longer he has)

another painting and a book

Agitation

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive