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PSP Association

9,266 members • 11,356 posts

All posts for March 2018

Death because of Aspiration

When someone goes to bed and the next morning they are found deceased because of Aspiration. Is that a silent thing that takes place (

When someone goes to bed and the next morning they are found deceased because of...

ARB1

•6 years ago

10 Replies

My Dad has passed away...

My dear dad died yesterday afternoon, peacefully with my sister and I by his side. He became very ill, very quickly on Monday afternoon, when we were called in...

My dear dad died yesterday afternoon, peacefully with my sister and I by his sid...

Hidden

•6 years ago

79 Replies

Cannabis Oil

Hi Well I ordered the CBD oil from the online place Kevin linked, have given it to Colin for a few days, lowest dose, and he said it makes him feel more...

Hi Well I ordered the CBD oil from the online place Kevin linked, have given it ...

Helen119

•6 years ago

23 Replies

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Blefharitis on PSP patients.

I am interested in learning about your experiences to treat blepharitis in a patient with PSP. Drops of physiological serum or artificial tear have stopped...

I am interested in learning about your experiences to treat blepharitis in a pat...

LuisRodicioRodicio

•6 years ago

15 Replies

Dan in Hospital

Dan had a low grade fever on and off you 2 1/2 days. I brought him into the EMergency Room because his breathing seemed also fast and labored. It turns out...

Dan had a low grade fever on and off you 2 1/2 days. I brought him into the EMe...

Karynleitner

•6 years ago

19 Replies

PSP 5K Virtual Run

Well we did our 5K run last Saturday in the freezing cold and some snow flurries. We managed to get to the finishing line next to the car park where our...

Well we did our 5K run last Saturday in the freezing cold and some snow flurries...

Nanny857

•6 years ago

22 Replies

He is resting in peace.

It is with a sad heart that I announce the passing of my dear husband, Jim. It was Friday, March 9, 2018 and very much unexpected. He was in hospice for only...

It is with a sad heart that I announce the passing of my dear husband, Jim. It w...

johns65

•6 years ago

32 Replies

Solution to buttering toast?

Hi All, especially Patrick, Borrowed this contraption when I broke my wrist, and recently when I had a finger operated on. Toast was difficult for me too! This...

Hi All, especially Patrick, Borrowed this contraption when I broke my wrist, and...

honjen43

•6 years ago

10 Replies

Removing Mucus from esophagus

Need to know how remove mucus in throat and esophagus without having to sneeze my head off every 20 - 30 minutes? I have been diagnosed with the flu.

Need to know how remove mucus in throat and esophagus without having to sneeze m...

12638rsm

•6 years ago

4 Replies

Bathroom Remodel

We are in the process of remodeling our bathroom and would appreciate hearing suggestions that would be helpful going forward. John is still mobile but his...

We are in the process of remodeling our bathroom and would appreciate hearing su...

Abrecheisen53

•6 years ago

38 Replies

Post times

I've been trying to work out how and why people are posting at all times of the day and night. Having just read Sarah's post and your replies I now understand...

I've been trying to work out how and why people are posting at all times of the ...

bryval

•6 years ago

18 Replies

Fever at end of day

Dan has had a slight decline the past few days .Less alert, legs weaker during transfer, sometimes holding his food and not taking a bite and eyes that seem...

Dan has had a slight decline the past few days .Less alert, legs weaker during ...

Karynleitner

•6 years ago

13 Replies

Trials and tribulations of Georgepa and the ironing board

As you are probably aware by now we are snowed in , in Devon and I am also snowed under with a pile of ironing waiting to be done and today seems like a...

As you are probably aware by now we are snowed in , in Devon and I am also sno...

Georgepa

•6 years ago

30 Replies

Fall prevention tip

Maybe someone out there has some suggestions for me! Steve falls several times per month and has been doing do for about 3 years . We've been lucky so far with...

Maybe someone out there has some suggestions for me! Steve falls several times p...

Khartt

•6 years ago

20 Replies

Off the cliff - part two

Many thanks to all who replied to my earlier post - lots of support and helpful tips. The manual hoist is being used and a ceiling hoist will be fitted on...

Many thanks to all who replied to my earlier post - lots of support and helpful ...

bryval

•6 years ago

12 Replies

Oh no not again

What happened to sunny Devon? It is more like freezing Siberia here, we poor southern souls are not equipped to deal with this .My cat is once again looking...

What happened to sunny Devon? It is more like freezing Siberia here, we poor sou...

Georgepa

•6 years ago

52 Replies

Symptoms masked

October, 2015 my husband, TJ fell off our front veranda dislocating & fracturing C6/C7. Was active plumber, civil engineer, blacksmith. 14 weeks in local...

October, 2015 my husband, TJ fell off our front veranda dislocating & fracturing...

Caz49

•6 years ago

10 Replies

New person

Hi my name is Jo. I have recently been diagnosedwith CBD. And living in Cornwall i am feeling a bit isolated

Hi my name is Jo. I have recently been diagnosedwith CBD. And living in Cornwall...

cameoboy11

•6 years ago

32 Replies

Sleeping

I am quickly running out of patience tonight. It’s only 1:15am and I have already seen to Mum 4 times since 12:30 either to get her comfy or help her to the...

I am quickly running out of patience tonight. It’s only 1:15am and I have alrea...

Sarah1972

•6 years ago

30 Replies

Nearing end stage?

Hi all. I have just joined this site and have been reading through your many posts. I am saddened to see so many people struggling with this condition - and...

Hi all. I have just joined this site and have been reading through your many pos...

Martha_k_uk

•6 years ago

27 Replies

Not Feeling as Useless

Thank you to all you wonderful wonderful people who responded to my 'Feeling Useless'. Nigel now has a sign by his bed asking people to speak simply to him...

Thank you to all you wonderful wonderful people who responded to my 'Feeling Use...

AliBee1

•6 years ago

8 Replies

installing a stairlift

the first P in PSP means Progressive so my wife and i are discussing installing a chairlift for me as things will get worse. it seems that there are many...

the first P in PSP means Progressive so my wife and i are discussing installing ...

jmoffat

•6 years ago

26 Replies

? Privatisation of the NHS?

There appears to be a move to put large swathes of the NHS into the private sector. https://healthunlocked.com/thyroiduk/posts/137392100/changes-to-the-nhs...

There appears to be a move to put large swathes of the NHS into the private sect...

Kevin_1

•6 years ago

19 Replies

Feeling useless

Hi All Nigel has CBD. We had a wonderful Revitalise respite week once we got there and were very sad to leave on Saturday having met up with old friends and...

Hi All Nigel has CBD. We had a wonderful Revitalise respite week once we got the...

AliBee1

•6 years ago

37 Replies

Off the cliff

Well Valerie has been on a plateau for the last few months but has just fallen off the cliff !! First her left leg collapsed and now the right - she can no...

Well Valerie has been on a plateau for the last few months but has just fallen o...

bryval

•6 years ago

15 Replies

PSP carers available

Hello everyone, Before I start, I would like to appologise in advance, if this post shouldnt be here. If it shouldnt, then please let me know and I will...

Hello everyone, Before I start, I would like to appologise in advance, if this ...

janette1105

•6 years ago

24 Replies

LPA fee Refund

I think someone might already have posted this here. If so nods to them. Anyone who applied to register a Lasting Power of Attorney (LPA) between 1st April...

I think someone might already have posted this here. If so nods to them. Anyon...

Kevin_1

•6 years ago

36 Replies

Where do we go from here....

So my lovely PSP friends we have once again hit a brick wall😡 after a non co-operative, unsympathetic, ignorant GP visit recently ( seeing the neurologist at...

So my lovely PSP friends we have once again hit a brick wall😡 after a non co-op...

Careenh

•6 years ago

16 Replies

Courageous Mum

Today has been a good day after what was a horror of a day yesterday. Mum had another seizure in early hours of yesterday morning so was very poorly and...

Today has been a good day after what was a horror of a day yesterday. Mum had ...

Spiralsparkle

•6 years ago

16 Replies

Blue Badge Scheme

Some good news, we were successful in our application for the Blue Badge. Now we can park in disability parking bays. I didn't think we would get it as I had...

Some good news, we were successful in our application for the Blue Badge. Now w...

Nanny857

•6 years ago

22 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2018

Death because of Aspiration

My Dad has passed away...

Cannabis Oil

Blefharitis on PSP patients.

Dan in Hospital

PSP 5K Virtual Run

He is resting in peace.

Solution to buttering toast?

Removing Mucus from esophagus

Bathroom Remodel

Post times

Fever at end of day

Trials and tribulations of Georgepa and the ironing board

Fall prevention tip

Off the cliff - part two

Oh no not again

Symptoms masked

New person

Sleeping

Nearing end stage?

Not Feeling as Useless

installing a stairlift

? Privatisation of the NHS?

Feeling useless

Off the cliff

PSP carers available

LPA fee Refund

Where do we go from here....

Courageous Mum

Blue Badge Scheme

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive