PSP Association
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Cannabis Oil

Hi

Well I ordered the CBD oil from the online place Kevin linked, have given it to Colin for a few days, lowest dose, and he said it makes him feel more relaxed, I haven’t noticed any difference in is rigidity, but if he feels better I will carry on, I will let you know if there are any more benefits, as I will be upping the dose weekly.

Love and hugs

Helen xxx

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oldestnewest

That is good to hear and good to know..............

Thanks,

Patrick.

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I've been on CBD oil now for a couple of months. I started out low and have worked up to 1,000 mg. It has not helped me with rigidity but does help with tremors. One thing I have found helpful is CBD cream. My understanding is it is coconut cream mixed with CBD oil. It's wonderful. Any aches and pains are gone within a short time of applying the cream. My doctor is aware I am using and has no problem with it.

I get my oil locally and it's very reasonably priced compared to what I've seen online but they do not sell online for now. Wisconsin just legalized at the end of 2017.

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Thanks for the info taihde, this sounds useful for my husband. It won't be legal in the UK but sometimes you have to break rules, anything that helps him with pain.

Kate xx

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W is now saying his back is very sore and stiff. I'm wondering if this is the start of the rigidity part of PSP setting in. Will ask GP if he will refer him for Physio to see if that eases it. If not, let me know if you break the rules Kate and it helps and I might join you! xx

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Kevin said is legal from licensed sellers, see his reply to me further down post.

Love kate xxx

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Hi taihde

I've just noticed your post.

That might be the correct dose for you, but it sounds high. The UK Health recommendation for Parkinson's is 6mg twice a day. However many factors can influence the dose people need individually.

You might want to take a look at this. Too much oil has a decreasing effect.

"How much oil should I take?"

cbdoilusers.com/cbd-oil-dos...

I'm glad its working for you. :)

Best to you

Kevin

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The dosage is 1 dropper full 2x day. So it is 1 mg per dropper. The strength is what has been increasing to the 1000 mg. The neurologist is monitoring so I feel safe with the dosage. I've actually noticed my left arm (which has had no movement for a few months) in the last few days is actually moving a little and I could hold a mirror between my thumb and fingers this morning. Baby steps but an improvement for however long it lasts. I was just tested last week and still have 100% in my right arm, good balance and good cognitive skills. So at the moment things are moving slowly and I am trying anything I can to keep it that way.

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Hi taihde

My apologies for interfering. The fact that you have a neurologist monitoring is great.

I am so pleased you are getting such benefits too.

We so need more research on this.

Good luck. I so hope you continue to get more function.

Best to you.

Kevin

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P.S.

I'm being a fussy old hen and you don't need that!

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Cream sounds interesting too.

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Keep us informed Helen, it's something I have been considering. Ben wears a morphine patch so a bit worried I will OD him.

Love Kate Xxx

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Hi Kate

The sprays deliver a precise dose. So it is easy to control.

xx

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Hi Kate

Coming back:

This may be of interest to you.

medscape.com/viewarticle/75...

This was trialling full cannabis not just the oil which has the psychotropic THC removed. Its of interest because it shows no conflict between the two.

I've lost that link for the Cannabinol oil. Could you post it for me please?

Warmly

Kevin

xx

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Hi Kevin, thanks so much for the info. Not sure which link you mean (am I being a bit blonde!) re Cannabinol oil, have googled the said oil and several links come up. The info taihde re CBD cream sounds quite good to try with Ben. All this makes me feel like a dealer as I understand it's not legal here. Not sure if that is correct but know doctors can't prescribe as I asked Bens GP directly. Talk about living life on the edge!

Love Kate

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Hi Kate

No, its me having a blond moment. Still have them despite having lost my hair - and that's not fair at all! It was Helen who had the link. Sorry.

No Cannabinol (CBD oil) is legal in the UK. from licensed sellers.

Cannabis is made up of two families of active ingredients. THC and Cannabinol. The THC is the psychotropic or drug component and the Cannabinol is not a 'drug' as such. CBD will not get you 'high' and it is legal. GP's can prescribe it, but only for a very limited number of illnesses. PSP is not one of them.

Sorry for the confusion.

Warmly

Kevin

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Sorry I don’t know how to do that but if you search HEMPURA CO UK it will come up, sorry not IT literate xx

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Hi Helen - no matter - you got there in the end - I really appreciate it thanks.

I've got my order in. :)

xx

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Hi Helen

Thanks for the info.

I am putting my order in today.

Cheers

Kevin

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Which brand did you order Helen? My brain can't seem to find the link on prior posts?

Did you just start using it or get Ok for Dr first?

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Hi it’s HEMPURA.co.uk and no I have not yet mentioned it to the doctors etc was going to see how it affected Colin first to see if I carry on using it

Love and hugs

Helen xxx

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Hope it helps. I'm really interested in this as Mum has epilepsy now aswell and I've read it also helps with that.

Did you get the lowest strength one?

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Hi Helen, I'm looking forward to hearing how this goes for Colin. xx

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Hi Helen

I was telling my daughter about your post and she tells me that you can buy it in Holland and Barrett in the UK but she is not sure what strength it is.

Thanks for the info

Ali B

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