Posts - PSP Association | HealthUnlocked

PSP Association

9,390 members • 11,420 posts

All posts for March 2018

Crying

I am sitting here eating an ice cream and crying, George is coughing and choking, holding his breath, telling to breath and he is saying he can’t, why is life...

I am sitting here eating an ice cream and crying, George is coughing and choking...

Yvonneandgeorge

•6 years ago

143 Replies

Liz and I - Good memories

Taking a break from gardening. This was taken in 2014 - So recent. Liz could walk with a little support then.

Taking a break from gardening. This was taken in 2014 - So recent. Liz could wal...

Kevin_1

•6 years ago

43 Replies

Brass Monkeys

Hi Folks So sorry to have missed it - I was gutted - flu etc. Amanda sent me the photos - There's so much energy in them! I showed them to Liz and she...

Hi Folks So sorry to have missed it - I was gutted - flu etc. Amanda sent me t...

Kevin_1

•6 years ago

20 Replies

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Supplements and aid-devices you use

My parents live in India. I will be visiting them soon (in a few days) due to an emergency. My father was very recently diagnosed with PSP, but has been...

My parents live in India. I will be visiting them soon (in a few days) due to an...

Mary82

•6 years ago

18 Replies

I wish I knew what to expect (late stages).

My father has been in a care home since a stay in hospital with pneumonia last year. He declined a PEG, but sometimes is just too tired to eat or drink (food...

My father has been in a care home since a stay in hospital with pneumonia last y...

Blots

•6 years ago

44 Replies

Sudden deterioration after inhaler

Hello everyone, Thank for having this online community and support. I am new to this site. In 2014, my father fell and hurt his head. Following this he had...

Hello everyone, Thank for having this online community and support. I am new to ...

Mary82

•6 years ago

5 Replies

Feeding aids

Hi everyone, I came across this link on another PSP support group site. Interesting selection of feeding and drinking aids. I don't know how well they work...

Hi everyone, I came across this link on another PSP support group site. Interes...

Sawa

•6 years ago

4 Replies

The PSP Chronicles Winter Update

December 2017 Just typing the word “winter” depresses me. I’m not welcoming the thought of being shut indoors for the next few months. The dark cloud of Jack’s...

December 2017 Just typing the word “winter” depresses me. I’m not welcoming the ...

daddyt

•6 years ago

12 Replies

The PSP Chronicles Winter Update

It's been a while my friends. I'll post the link to my latest blog post, it's rather lengthy. The gremlins inside my laptop won't allow me to copy the link...

It's been a while my friends. I'll post the link to my latest blog post, it's ra...

daddyt

•6 years ago

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CBD

Not sure if I have been correctly diagnosed as having CBD. My right foot has a slight tremor occasionally and I just have to move it for it to stop and my...

Not sure if I have been correctly diagnosed as having CBD. My right foot has a ...

leyana

•6 years ago

20 Replies

Scenario?

Just a little advice needed J is sweating quite a bit says he does not feel too well does not want doctor or hospital. What does one do in this case? Adhere...

Just a little advice needed J is sweating quite a bit says he does not feel too ...

Escada29

•6 years ago

5 Replies

Having John home

Although I have followed site for a long time this is the first time I have posted. My husband was diagnosed with PSP in 2015 but I know he has had it a lot...

Although I have followed site for a long time this is the first time I have post...

Dickenson2

•6 years ago

12 Replies

Living and dying with PSP

Hello, my husband was first diagnosed at 75 with Parkinson's and ataxia. He continued to fall, have slurred speech, trouble with eyes, memory, got car by, was...

Hello, my husband was first diagnosed at 75 with Parkinson's and ataxia. He cont...

Hidden

•6 years ago

21 Replies

Driving!!

When should my husband with PSP stop driving? He drives short distances maybe 20 mins. 2 or 3 times a week. I let him do grocery shopping as that's about the...

When should my husband with PSP stop driving? He drives short distances maybe 20...

daffodil48

•6 years ago

35 Replies

New here. Husband diagnosed first with PD now PSP

Hi, this is my third attempt to post. Just lost my (LONG) intro for the second time . Don't know what I am doing wrong. So this time I am keeping it short....

Hi, this is my third attempt to post. Just lost my (LONG) intro for the second t...

daffodil48

•6 years ago

15 Replies

Danb

I get chronic cellulitis end up in the hospital. I was put in a maintenance does of penicillin. Had knee surgery on fri, by Monday started breaking out in...

I get chronic cellulitis end up in the hospital. I was put in a maintenance doe...

BENJAMAN2

•6 years ago

2 Replies

Some good news.

Larry got though his cold without any noticeable side effects or decline. His primary care doctor was here on Tuesday and listen to his lungs which were...

Larry got though his cold without any noticeable side effects or decline. His pr...

Hidden

•6 years ago

16 Replies

International Womens Day

I just wanted to say Happy International Womens Day to you all but especially my mum Brenda. She is like all of you going above and beyond in the name of love...

I just wanted to say Happy International Womens Day to you all but especially my...

Pjgil

•6 years ago

9 Replies

Anonymity?

Hi everyone, especially those who haven't been on here very long. At the moment some of us are on a high, meeting old friends, putting names to those that have...

Hi everyone, especially those who haven't been on here very long. At the moment ...

Heady

•6 years ago

40 Replies

TRE &PSP

Has anyone tried TRE ? Do you think it may help?

Samila

•6 years ago

2 Replies

Help with care funding

Hi. My mum was diagnosed with PSP three years ago. We believe she had it for at least 2 years previous to her diagnosis. My dad was her main carer but he died...

Hi. My mum was diagnosed with PSP three years ago. We believe she had it for at ...

Texaskingy

•6 years ago

3 Replies

Meal time problems

Hi everyone ,my wife Kathy is in her 4th year of psp ,at meal time she sits in a lazyboy chair with 2 cushion on her lap the meal tray sits on top,as her eyes...

Hi everyone ,my wife Kathy is in her 4th year of psp ,at meal time she sits in a...

Birdman34265

•6 years ago

7 Replies

Free Recording of Minimizing Caregiver Fatigue Webinar by Janet Edmunson

https://tinyurl.com/caregiverfatigue Hopefully this comes up as a live link. Janet E, author of Finding Meaning with Charles, an educator and CBD-caregiver,...

https://tinyurl.com/caregiverfatigue Hopefully this comes up as a live link. Jan...

raincitygirl

•6 years ago

1 Reply

C-ya’ll

I think I might be too early along for this site everyone one is dieing already I’m not ready to talk about that yet! Sorry folks... I know I’m going to be...

I think I might be too early along for this site everyone one is dieing already ...

Rhonda838

•6 years ago

34 Replies

Progressive supranuclear palsy or psp

I'm a caregiver for a woman who has this disease. Everything (which isn't much), is negative. Does anyone care for a person with psp and can give me some...

I'm a caregiver for a woman who has this disease. Everything (which isn't much),...

devine1dm

•6 years ago

12 Replies

Great meet up

Well I'm home despite closure of District Line and idiots on the M4 !! It was great meeting you all today and putting faces to names. Thanks Amanda for...

Well I'm home despite closure of District Line and idiots on the M4 !! It was gr...

bryval

•6 years ago

11 Replies

Can't stop coughing

My client has PSP and may have recently had a cold. Took her to PCP and he cave her clindamycin. I don't think it really did anything. She won't stop coughing....

My client has PSP and may have recently had a cold. Took her to PCP and he cave ...

Hidden

•6 years ago

2 Replies

Fearing the end is not far

I am sitting here with my beloved mum on a balcony in Tenerife having spent a week away with them in the sun. Today I go home but they are here a few more...

I am sitting here with my beloved mum on a balcony in Tenerife having spent a we...

Careenh

•6 years ago

5 Replies

Seeking some Advice on PSP

Hello, nice to meet you all. My husband started to feel unwell around 6 years ago which was attributed to severe anxiety. He started to feel dizzy, and...

Hello, nice to meet you all. My husband started to feel unwell around 6 years...

eppendorf

•6 years ago

25 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2018

Crying

Liz and I - Good memories

Brass Monkeys

Supplements and aid-devices you use

I wish I knew what to expect (late stages).

Sudden deterioration after inhaler

Feeding aids

The PSP Chronicles Winter Update

The PSP Chronicles Winter Update

CBD

Scenario?

Having John home

Living and dying with PSP

Driving!!

New here. Husband diagnosed first with PD now PSP

Danb

Some good news.

International Womens Day

Anonymity?

TRE &PSP

Help with care funding

Meal time problems

Free Recording of Minimizing Caregiver Fatigue Webinar by Janet Edmunson

C-ya’ll

More CHC questions

Progressive supranuclear palsy or psp

Great meet up

Can't stop coughing

Fearing the end is not far

Seeking some Advice on PSP

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive