Off the cliff - part two

[bryval]

Many thanks to all who replied to my earlier post - lots of support and helpful tips.

The manual hoist is being used and a ceiling hoist will be fitted on Weds. Extra care has been agreed and from tomorrow we will be getting 4 calls a day - a double up on the morning one.

GP has been and prescribed Fortisan extra nutritional drinks as well as trying hyocine patches to dry up the mucus in the throat.

The botox injections Valerie had 10 days ago seem to be easing the rigidity in her upper left arm. the lower arm and hand is still stiff but at least we have some progress. Next appointment booked in 3 months when hopefully we can try other limbs.

Sorry I can't remember who asked me about botox at the Brass Monkey but I hope you read this and pursue it with your consultant - it's worth a try.

Well I'm breathing again and getting to grips with the new regime !

Thanks again to everyone.

Bryan

[doglington]

What a relief for you both. Hope all goes well.

Jean xx

[Yvonneandgeorge in reply to doglington]

So happy for you both Yvonne xxxx

[NannaB]

So pleased things are being put in place Bryan and the Botox has made a difference. It was good meeting you at the Brass Monkey.

XxxX

[Marie_14]

Bryan do you mean you have two people coming in 4 times a day? If that is not the case then you are being taken advantage of!! You should be doing NOTHING when it comes to moving your wife. You have enough to cope with anyway. So make sure they know that and you have had advice from others about this. You are not superman! Glad you managed to meet a few people in London before all of this happened.

Take care.

Marie x

[Satt2015]

Pleased to read this Bryan!

I hope this ‘help’ eases things for you my darling x

[Richanne]

Very pleased to hear of the progress you're making.

I would just say that hyoscine had a terrible effect on Jon when it was used one time in hospital. He became confused and agitated and when his Parkinson's consultant found out she recognised it and took him off it saying that it was contraindicated for PSP. Patients do react differently of course but just look out for this effect and make the link if it occurs.

All the best

Rosemary Rx

[NanBabs in reply to Richanne]

P has been on hyoscine for several months now with no noticeable adverse side effects but it has not really stopped the coughing/choking, however the GP is reluctant to increase the dose yet.

xx

[Richanne in reply to NanBabs]

I'm glad to hear that you haven't experienced the side effects we did. How very differently people can reactor the same drugs.

Rosemary Rx

[Katiebow]

Aren't the people on this site brilliant Bryan, how would you know what you can have put in place without the precious advice we get from them all. Pleased that you have things put in place to make life physically a bit easier for you both.

Warm wishes

Kate xxx

[cameoboy11 in reply to Katiebow]

As a new person to this site I too have found everyone so warm and welcoming. Brilliant ! as you say, Kate.

Jo xxx

[Robmatlol]

Glad to see help is in place now Bryan. We found that carbosistine worked very rapidly and effectively on mums mucous.

Take care, Michele xx

[NanBabs]

Glad to hear things are settling in to the new normal. I do hope the extra help will be enough for you too.

Are you still managing Valerie at night on your own ? P has to be turned by 2 people so night time would be very difficult if he was at home.

Take deep breaths and have a glass - or two - of wine !

xx