Before I start, I would like to appologise in advance, if this post shouldnt be here. If it shouldnt, then please let me know and I will delete it.
My name is Janette. I have a nursing background and I’ve been a live in arer over 19 years. I had a patient with PSP, I was his live in carer for 7 years. I learnt so much from him, but I can say, I gave so much too.... all my knowledge, care , all my time I could give, sometimes sacrificed my family in order to be there for the patient.
The biggest reward was for me or us carers, that each time we had an appoitment with his neurologist, each time the neurologist was pretty surprised that he was still here, alive. The neurologist said, it was also because of the standart of care we delivered as well as the the patient’s determination/strong will power to live, not to give up.... that was mine reward, not only appreciation from each family member and the patient, but the words and praises from the specialist.
Anyway, we have learnt a lot as I mentioned, i knew how to fill up neverending forms for funding and how to fight for the rights of the patient, my nursing background help me to deal with paliative care team, with physios, with OTs, ordering any neccesery equipments, we were lucky to get what ever we wanted. We learnt how to “fight” for my patient. 7 years was long 7 years, physically draining, mentally draining work, but oh man, it was worth it.
Me and my colleague (now best friends) had very difficult time after he died. It took us a long time to grieve.... We ‘ve stayed in touch with his wife, we meet now and then for tea and have reunion each year.
We moved on as I said, its been over 2 years....but somehow we cannot find satisfying work. I m a live in carer for a lady with different, completly different medical problem, my friend works with Dementia and Alzimers patients as a dailey carer in NW London.
Its only lately we found out, why we are not happy... We know a lot about PSP, we want to help people who have PSP, because it is such a rare illness, not lots of carers have caring/nursing experience in this way. I know everyone deserve equal care, absolutly. But we relized that we would love to became carers and help to those have PSP again.
Im a selfemployed live in carer, i have free one long weekend in each month at the moment. If anyone of you anywhere in UK ( would prefer London but willing to travel) are looking for a live in carer for respite , or to give you a hand with looking after you, your partners would need a help or someone else you know would need a help get in touch... maybe I can help.
My friend Hanne, who is a selfemployed carer, living in NW3 London, is also available, 5 to 7 days a week.
We have really great references. I, from my heart can say, we are good, dedicated carers who care.
Do get in touch with us if we could help you.
If any of you or admins think, that this post shouldnt be here, thats this place is not the right place to put this kind of post, please accept my appology. Do let me know and will immediatly delete it.
Thank you to those who read till the end.
Wishing you all a nice evening.