Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for March 2018

needles

David has mentioned a few times a feeling of being stabbed with needles random places all over his body, even in his fingers and toes. Has anyone else...

David has mentioned a few times a feeling of being stabbed with needles random p...

Kaka1234

•6 years ago

6 Replies

Weight loss with CBD

Hi all has anyone experience of continuous weight loss with their loved ones even though they are eating well. Not read anything in symptoms or on group that...

Hi all has anyone experience of continuous weight loss with their loved ones eve...

Greens

•6 years ago

17 Replies

Gone but in peace ...

Hello all - I rarely post and never knew whether I would again - my husband died in January (PSP) and his cremation was last Friday so it has been a gruelling...

Hello all - I rarely post and never knew whether I would again - my husband die...

Cp612

•6 years ago

27 Replies

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Goodbye

My mum passed away at 330 today. I lay with her and prayed and read the Lords my shepherd. I am glad I was with her but am devastated but she is now no longer...

My mum passed away at 330 today. I lay with her and prayed and read the Lords my...

Gill4mum

•6 years ago

25 Replies

How did I do it all those years? Response to all

First of all be a mother second of all be a caregiver and then I had my grandson for last night, just one night... and I am Exhausted! hhahahahah huh?...

First of all be a mother second of all be a caregiver and then I had my grandson...

abirke

•6 years ago

16 Replies

CBD and Alzheimer's and Parkinson's and what it might mean for PSP and CBD

Hi I'm just flagging this up here as posts can get buried in older threads. I've just made an attempt at a review with explanations of the whats and whys of...

Hi I'm just flagging this up here as posts can get buried in older threads. I'v...

Kevin_1

•6 years ago

5 Replies

PSP and Dale Breesden's book - The End of Alzheimers?

Has anyone read "The End of Alzheimer's" by Dale Breesden? It talks a lot about "tau" which I understand is a substance in the brain that is thought to be the...

Has anyone read "The End of Alzheimer's" by Dale Breesden? It talks a lot about...

PDDJED

•6 years ago

1 Reply

Blury vision

My readers don’t seem to be working as They used to. I see double vision most of the time when reading is this something that is normal? Rhonda

My readers don’t seem to be working as They used to. I see double vision most of...

Rhonda838

•6 years ago

11 Replies

Botox anyone?

Does anyone have experience of the benefits of Botox with stiffness in arms? Is it available through NHS( in UK) or privately? Does it work? My husband has...

Does anyone have experience of the benefits of Botox with stiffness in arms? Is...

Rowan8831

•6 years ago

13 Replies

Safety concern and falls

Although my husband was recently confirmed with PSP, he has been symptomatic for 3-4 years. He's had PT both inpatient and now home healthcare for over 3...

Although my husband was recently confirmed with PSP, he has been symptomatic for...

Khartt

•6 years ago

13 Replies

Question and Clarification

Charles only has pain when he eats and it's in his esophagus. I wasn't clear but Hospice has pared down his medication and we will keep the morphine when...

Charles only has pain when he eats and it's in his esophagus. I wasn't clear but...

Cuttercat

•6 years ago

25 Replies

Cannabis oil?

Hi all I haven't posted for ages and my lovely Mother who has CBD in her 7th year. We are all battling on with her and I am thinking about trying cannabis oil...

Hi all I haven't posted for ages and my lovely Mother who has CBD in her 7th yea...

Hidden

•6 years ago

59 Replies

DLB disease ,wonder if it has anything to with hallucinations in CBD and psp

https://www.alz.org/dementia/dementia-with-lewy-bodies-symptoms.asp

Hidden

•6 years ago

8 Replies

Is this a decline?

I bought a transit chair to move Larry around when we went out of the house. I only used it a few times. He’s been house bound due to the ten steps to the...

I bought a transit chair to move Larry around when we went out of the house. I o...

Hidden

•6 years ago

8 Replies

Cold but beautiful

I was tempted, but changed my mind. The birds made snow angels instead.

NannaB

•6 years ago

19 Replies

Sunny Devon!!

Who would have thought it sunny Devon turned into Winter wonderland . Two days ago my hanging baskets were ablaze with colour , winter flowering pansies in...

Who would have thought it sunny Devon turned into Winter wonderland . Two days a...

Georgepa

•6 years ago

17 Replies

Very happy to see you all

Hi I’m Rhonda Caples 56 and diagnosed with PSP three months ago.. bummer. I’ve been doing ok I guess. My doctor told me yesterday that I need a...

Hi I’m Rhonda Caples 56 and diagnosed with PSP three months ago.. bummer. I...

Rhonda838

•6 years ago

54 Replies

My husband morning regiment

While I wait for him to be finished his morning duty. Coffee, water, Gingerale mixed with juice, carbonate flavor water, Starbucks Frappuccino drink and of...

While I wait for him to be finished his morning duty. Coffee, water, Gingerale m...

Hidden

•6 years ago

9 Replies

Larry’s birthday today.

He’s 70. I turned 70 last Thursday. Two old men muddling along with PSP. I had a mild cold last week. He’s got it this week. Think this might be his worst day....

He’s 70. I turned 70 last Thursday. Two old men muddling along with PSP. I had a...

Hidden

•6 years ago

29 Replies

No medication

Has anybody else been advised to come. Off their mediication. Like I. Have Iwas advised to. Come off my Parkinsons medication because it was doing me. No good...

Has anybody else been advised to come. Off their mediication. Like I. Have Iwas...

Iansgadan

•6 years ago

20 Replies

Opened the curtains...

and this is what I saw. Looks like we will be going nowhere today except close to the fire. It's still snowing and W has a hospital appointment tomorrow. Not...

and this is what I saw. Looks like we will be going nowhere today except close ...

Nanny857

•6 years ago

23 Replies

Mom with PSP in PA & helpful book

Hi All I have been reading your posts for awhile and they have been so helpful. We are in the US and it seems that no one knows what PSP is here. The...

Hi All I have been reading your posts for awhile and they have been so helpful....

EmilyRD

•6 years ago

14 Replies

CBD diagnosis--what should we ask the neuro?

Hi all, We're seeing the specialist tomorrow about a possible diagnosis of CBD for my husband, from the first neuro. He's already had a CT scan, an MRI, the...

Hi all, We're seeing the specialist tomorrow about a possible diagnosis of CBD f...

LostinHeadSpace

•6 years ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for March 2018

needles

Weight loss with CBD

Gone but in peace ...

Goodbye

How did I do it all those years? Response to all

CBD and Alzheimer's and Parkinson's and what it might mean for PSP and CBD

PSP and Dale Breesden's book - The End of Alzheimers?

Blury vision

Botox anyone?

Safety concern and falls

Question and Clarification

Cannabis oil?

DLB disease ,wonder if it has anything to with hallucinations in CBD and psp

Is this a decline?

Cold but beautiful

Sunny Devon!!

Very happy to see you all

My husband morning regiment

Larry’s birthday today.

No medication

Opened the curtains...

Mom with PSP in PA & helpful book

CBD diagnosis--what should we ask the neuro?

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive