Dan has had a slight decline the past few days .Less alert, legs weaker during transfer, sometimes holding his food and not taking a bite and eyes that seem droopy. I was watching him closely as this has often been a prelude to illness.
Saturday night as I was leaving for a short time to see our son perform in a play at church, I kissed him and he had a fever. I gave him Ibuprofen and the fever went down. Sunday he had no fever all day, ate well and then the fever came back with a vengeance at night. I made sure he had a fair amount if liquid as I had been concerned about that. His breathing seems to be a little labored at times, but I don’t know if it’s much different then usual. He does not really aspirate or choke much yet, so I doubt that could be the cause. We have a nurse coming to do an assessment tomorrow. I just pray all is well until then. I would need to call an ambulance to get him medical care.
Any thoughts appreciated. Has anyone had experience with fever in PSP patients ? Fluid requirements ? Has anyone noticed their loved ones breathing change with PSP? Also, do PSP sufferers tend to get Urinary Track Infections. He does not have a catheter , but has still had a UTI. ?
This disease is starting to wear us down. Stress and anxiety are getting the best of me. Veterans coming tomorrow to see if they can help. I pray they can provide some relief.
As always , thanks for your help.😊