Posts - PSP Association | HealthUnlocked

PSP Association

9,317 members • 11,376 posts

All posts for May 2017

Website giving me grief again

For some reason it will not recognize me yet it shows my photo and no daily email. Maybe fixed now.Trying to see if Jill has been on ,How are you Jill ? Dee...

For some reason it will not recognize me yet it shows my photo and no daily emai...

•7 years ago

A balance issue........

Hi, I am wondering if the fact that yesterday afternoon my balance got noticeably worse could be down to the fact that I may be getting a head cold ? As I...

Hi, I am wondering if the fact that yesterday afternoon my balance got noticeab...

•7 years ago

CHC process

Hi all, could I please ask some advice from those of you knowledgeable of the CHC process please? We applied last November, and dad didn't even trigger an...

Hi all, could I please ask some advice from those of you knowledgeable of the CH...

•7 years ago

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The day started 3 hours ago

So this day has begun, C is fed up already wants a pillow over his face, me to feed him loads of pills, then asked for a chocolate bar, how screwed up is......

So this day has begun, C is fed up already wants a pillow over his face, me to f...

•7 years ago

How hard is this

How hard is this, having to live each day as it comes, caring for our loved ones, never knowing what tomorrow will bring. Not being able to look forward, not...

How hard is this, having to live each day as it comes, caring for our loved ones...

•7 years ago

Single carer hoist chc

Morning Glad the rain has stopped! Ten weeks down the line hoist has been approved and chc paying ! Will post pics! Me thinks i am wise woman, started the...

Morning Glad the rain has stopped! Ten weeks down the line hoist has been approv...

•7 years ago

Raising money & awareness for PSP

Hi all Dad has psp and I want to raise money for psp research for him and everyone who has this damn condition as I can't fix this myself. Therefore my...

Hi all Dad has psp and I want to raise money for psp research for him and every...

•7 years ago

PSP Patient

I'm Pharmacist Mahesh Kumar from Hyderabad Sindh Pakistan. My Uncle Suffers from PSP. No treatment here. Plz help.

I'm Pharmacist Mahesh Kumar from Hyderabad Sindh Pakistan. My Uncle Suffers from...

•7 years ago

Hello everyone

Well back from my holiday feeling ready to deal with anything. Such a lovely break. Yvonne xxxxx

Well back from my holiday feeling ready to deal with anything. Such a lovely br...

Yvonneandgeorge

•7 years ago

PSP AWARENESS WEEK 15th - 21th MAY - 'It's Not Parkinson's'

For people with PSP getting a correct diagnosis is challenging, with 30%* incorrectly diagnosed with Parkinson’s. Even after referral to a neurologist more...

For people with PSP getting a correct diagnosis is challenging, with 30%* incorr...

PSPA•7 years ago

What are the four stages of PSP.

I can't seem to get a straight answer from anyone. Please, I need the four stages of PSP, defined, along with what to expect, behaviors, that would be out of...

I can't seem to get a straight answer from anyone. Please, I need the four stage...

•7 years ago

Home from respite!

Well hello everyone I have my mojo back! Went off with my sis in law for a week of walking in west wales, Rog had live in care, always leave with a heavy heart...

Well hello everyone I have my mojo back! Went off with my sis in law for a week ...

•7 years ago

There is hope for us all!

Check out the website Toxicpuzzle.com. We saw the whole riveting movie, Toxic Puzzle, a few nights ago ( it's first public screening), and there was a...

Check out the website Toxicpuzzle.com. We saw the whole riveting movie, Toxic P...

•7 years ago

Anti-slip + assistive tableware

I had seen this before - at the crowdfunding stage. Now you can get it in the US and the UK. It could be useful for one-handed or unstable eaters. And a 15%...

I had seen this before - at the crowdfunding stage. Now you can get it in the US...

•7 years ago

Has anyone tried supplements?

Hello friends, I was wondering if anyone had tried any nutritional or other supplements? Our nurse practitioner it couldn't hurt to add Co Q 10 and DHA to...

Hello friends, I was wondering if anyone had tried any nutritional or other s...

•7 years ago

Next episode!

Well he did the weeding and managed to remove some flowers too! I think as they weren't in bloom he thought they were grass!!😁 Later he called me out to ask...

Well he did the weeding and managed to remove some flowers too! I think as they...

•7 years ago

Live in care

HI all, I'm wondering please, for those of you who have ever had short term live-in care, how did you go about arranging it privately please? Dad is self...

HI all, I'm wondering please, for those of you who have ever had short term live...

•7 years ago

This is unreal

There is a care company that has said they could maybe pick Archie's care plan up but they want (because they are not local ) to make it worth while? For...

There is a care company that has said they could maybe pick Archie's care plan u...

•7 years ago

Recent Highlight from Brain Support Network Blog

Check out recent highlights from Brain Support Network's blog here -- https://www.brainsupportnetwork.org/blog/ Some items recently posted that may be of...

Check out recent highlights from Brain Support Network's blog here -- https://ww...

•7 years ago

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Drugs/Side Effects/Lack of Sleep and CHC

Because of hallucinations, we changed from Atropine drops to Hyoscin patches, then lived in a nightmare for 48 hours. B. was acting as if he had a UTI, trying...

Because of hallucinations, we changed from Atropine drops to Hyoscin patches, th...

•7 years ago

Hi I'm new to this site.

My husband Chip, was diagnosed with cbd three yrs ago. I was looking for information when I found this page. I've all ready gotten information from reading...

My husband Chip, was diagnosed with cbd three yrs ago. I was looking for informa...

•7 years ago

Going to run away!!

Can you believe my young gardener rang me and wants to come to cut my trees and weed the brambles!!! THIS WEEK! I thought I wasn't going to have to face him...

Can you believe my young gardener rang me and wants to come to cut my trees and ...

•7 years ago

Confused.

Hi folks. I am so thankful for this forum.I read the posts daily and although What I read is scary, I feel I am in the right place to gain knowledge to better...

Hi folks. I am so thankful for this forum.I read the posts daily and although Wh...

•7 years ago

PSP diagnosed after hip surgery

My dad is recently diagnosed of PSP and like many of what is described here, we now realize he must have had this for a while now. His slowing down happened...

My dad is recently diagnosed of PSP and like many of what is described here, we ...

•7 years ago

Feeling exhausted

My partner was diagnosed with cbd and dementia two years ago although it took nearly three years for doctors to take his condition seriously. I feel that he...

My partner was diagnosed with cbd and dementia two years ago although it took ...

•7 years ago

Kaaljeet

I'm writing this in hopes that Kaaljeet, who posted earlier a suggestion for a product that might help, will read this and come back. Dear Kaaljeet, I think...

I'm writing this in hopes that Kaaljeet, who posted earlier a suggestion for a p...

•7 years ago

Talk about putting your foot in it!!

Just had my nice young man come to do the garden. I went to pay him and saw he was a bit sunburnt and looked a bit hot. Guess what I said? 'You look hot'!!!...

Just had my nice young man come to do the garden. I went to pay him and saw he ...

•7 years ago

Ideas anybody

Hi all At the moment I'm hitting a brick wall . Archie is now 8 weeks in hospital and still no care being picked up . We have had chc for 2 weeks previously...

Hi all At the moment I'm hitting a brick wall . Archie is now 8 weeks in hospit...

•7 years ago

Emergency Surgery

So it's Friday evening and dad has been feeling ill all day, his primary doctor has been contacted earlier and he advised to only push liquids plus monitor for...

So it's Friday evening and dad has been feeling ill all day, his primary doctor ...

•7 years ago

Article on grief in long term illnesses.

http://whatsyourgrief.com/anticipatory-grief/ Found this an informative read.

http://whatsyourgrief.com/anticipatory-grief/ Found this an informative read.

•7 years ago

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