Article on grief in long term illnesses. - PSP Association

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Article on grief in long term illnesses.

Spiralsparkle profile image
8 Replies

whatsyourgrief.com/anticipa...

Found this an informative read.

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Spiralsparkle profile image
Spiralsparkle
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8 Replies
Ettavb profile image
Ettavb

I liked the article, and the whole website. This article was even more helpful for my current situation (sister unexpectedly passed away several months back; she was the caretaker for Mom who has had CBD for a number of years) whatsyourgrief.com/loss-of-... . I have both the anticipatory grief, and then the plain old unexpected grief -- which all equates to a supreme sense of loss of control.

Spiralsparkle profile image
Spiralsparkle in reply to Ettavb

Big hugs x

Heady profile image
Heady

Thank you! I have just read this and found it to be exactly how I am feeling. I spent the last four years greiving for Steve. Now I can only really feel relief that he is no longer suffering from PSP. It was good to read that this is perfectly normal. I miss him dreadfully, but would not want him to suffer any more of the evil symptoms PSP wrought on his body. Do I feel guilty? I wonder, did I still love him when he died? The answer is yes to both of those questions. The love does out weigh the guilt most of the time.

Lots of love

Anne

Spiralsparkle profile image
Spiralsparkle in reply to Heady

Big hugs x

Satt2015 profile image
Satt2015

Fantastic article thank you Spiral!! X

Spiralsparkle profile image
Spiralsparkle in reply to Satt2015

😘🤗

I'm glad I read that. I felt I'd lost my mum before she actually died (not psp related btw) but now I feel this with my dear dad. This article hits the spot. Thankyou for sharing xx

Marie_14 profile image
Marie_14

Spiral

Thank you for that. It was really interesting. You do feel grief before and after. I couldn't cry for a long time after. Now I do but at really odd times. I think like Heady I was querying hoiw much I really loved Garry and so on. Now I am over that bit and the tears are coming. I know I loved him very much but I do wonder if he knew even though I told him everyday! Maybe we feel guilt for still being here? Not to mention intense loniless.

Marie x

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