My dad is recently diagnosed of PSP and like many of what is described here, we now realize he must have had this for a while now. His slowing down happened many years back. Thinking of it now, it was a sin on our part to have related his slowness to laziness and forgetfulness to lack to attention. As a family we are trying to settle down with the reality. It is not very positive to read the details here, but it certainly gives a lot of perspective. My virtual hug to all of you there suffering this directly or through your loved ones. thanks to all who contribute to this forum.
Around a month back, he fell down and broke his hip bones. He was at least handling his toilet routines + a small evening walk in the local until then. All the specialists agreed that a surgery (hip ball replacement) would be the best. His post surgery POCD (post operation cognitive dysfunction) was worst though was a local anesthesia and went on for about 5 days. once we got past this stage, we are unable to mobilize him at all for the past one month. Things appear to progress quite a bit - there are days when he is cheerful & many days when he isn't. He now has swallowing issues (especially with liquids more than finely ground solids), unable to keep his head straight, no self-initiated movements on the left with the right hand being the only one that moves around a bit. His speech has got blurred & low. Cannot sit at all and when forced to, starts falling to his left. Other than the slowness & falls, he did not have the above symptoms before his hip surgery.
He appears to have pain all over, and likes leg/hand massages. He can recognize people and can hear better than before.
1) Do any of you think we could have stayed without surgery and that would have at least left him the way he was? But yes, he did fall and was unable to walk due to the pain at that point.
2) We are trying our luck with physiotherapy. Is it likely to bring him back to his pre-fall state? we could continue this further, but he hates the physio time and we can see the pain he undergoes in his eyes
I do not see many doctors around, unless they are specialists, who appear to be well aware of this issue. Though Parkinson disease is common around, I do have any single distantly known person who has had this in the past. So any advice here would be helpful.