Surviving Care giver Stage!!

[gofigure]

How to prepare for the care giver role?

[Brenive]

No body minds them breast feeding in public, or do the other ____Beasts complain. ____.

[Kevin_1]

Hi gofigure

Welcome to the forum.

Are you a carer?

Care to say hello?

You will be well received, this is a supportive place.

Warmly

Kevin

[magpie_art in reply to Kevin_1]

The diagnosis for my husband is tentative based on an MRI. We are waiting for an appointment with the neurologist. We finally retired and were looking forward to a long, happy life together--best friends and all that. Now everything seems so awful. I'm so scared and sad.

[Kevin_1 in reply to magpie_art]

Hello magpie_art

We had something similar. I landed the job I had always longed for. No team to support, no direct manager and pretty much free reign doing what I loved the most.

We moved out of London to a house and garden that suited us perfectly. It was to be our retirement place where we too could grow old together.

Liz started to struggle with things. She was becoming weak and her 'labyrinthitis' grew worse. Eventually the diagnosis of PSP arrived and our hopes and dreams fell apart. All that was five years ago.

At first I was very frightened and could not cope with the increasing demand of caring. We got carers in far too late. I was on my knees with fatigue and emotional exhaustion.

It was like learning a new profession. Radical changes in lifestyle. Gradually we both adjusted. In some ways it get's easier, but it was a steep learning curve.

Sadness is a bit of an understatement. Each week there are new losses. The inevitable decline like a cruel clock marking endings.

But it is doable. there are still hugs and smiles. Sitting in the garden together. Though the care get more demanding it gets easier with practice. We try to make the most of it and enjoy what we have.

I wish you both the best with the neurologist. A PSP diagnosis is not the end. There is still much to be shared and time to do it in.

Warmest wishes to you both.

Kevin

[kenkr in reply to Kevin_1]

Thanks.

I am a caregiver for my wife with PSP.

[Kevin_1 in reply to kenkr]

Hi kenkr

Welcome to the forum and sorry you need to be here.

There is a lot of support for us all here and there are those arround who have experience to share.

I hope its as good place for you as it is for me.

Best wishes

Kevin