Back in March V was sent home from the hospice and my daughter and I were told to prepare ourselves as they thought V would only survive ten days to a fortnight . Well here we are in late May , once again back in Topsham on the Exe estuary taking in the sea air and sitting in the sun .I won't pretend V is the same V she was even a few months back but she is a determined lady . Sometimes she eats very little and sometimes she seems to manage to get down the most unlikely things and without choking ! The hospice palliative care nurse looks on in awe and amazement . At night she has muscular spasms and often stops breathing for up to a minute and in the silence we think is this it ,then off she goes again and determinedly wakes at three am declaring she is awake and not asleep ( this she will go on repeating for maybe an hour until we finally surrender and get her up in her chair . I say we , it is either me a long suffering carer or a Marie Curie nurse although strangely she often sleeps through the night when they appear . )
So there you have it - every day is different , one minute uncommunicative and unresponsive and later making a totally appropriate response to someone else's conversation which she has been earwigging on . I no longer know wether I am coming or going but one thing I do know is that the next person to say " have a lovely day " or "any plans for the weekend ?" is going to get both barrels from me !!!