Hospice

[Yvonneandgeorge]

Well this hospice is like a 5 star hotel, so lovely, so quiet, just feel like laying down and going to sleep. Took a picture of some of the gardens, so tranquil. Yvonne xxxx sorry it's around the wrong way xxxx

[Suebatt]

Hi Yvonne

It looks beautiful

Hope you are getting some rest too

Sue xx

[Yvonneandgeorge in reply to Suebatt]

Trying but not sleeping xxxx

[Suebatt in reply to Yvonneandgeorge]

I know that feeling Yvonne the 11weeks he's been in hospital I'm still up at night about 3

You take care and do get some rest and it sounds as though George is getting looked after

Sue xx

[Heady]

How is George settling? AND are you getting lots of rest????

Lots of love

Anne

[Yvonneandgeorge in reply to Heady]

Ann he seems very quiet, wanting to stay in bed all the time, have told them he needs to get up and get dressed, I don't let him stay in bed after they get him up at home. No agitation there, that is what they are trying to sort out. Bloody marvellous isn't it. Hope you are ok? Yvonne xxxx

[Marie_14 in reply to Yvonneandgeorge]

Yvonne that happened to Garry at the Hospice. I still don't understand it but he got upset when I left. Even though he knew he was only there for a week. They did sit him out in the chair but refused to allow him to use the controls. I think they were scared he would fall. I was scared at home too and in the end had to shove the controls under the chair!

In the Care Home he decided he wasn't getting out of bed. He really had had enough. I am sure you have asked him why he doesn't want to get out of bed. What did he say? He may well be scared he is there to die? Even though you have explained it's for respite? I am sure that is what went through Garry's mind. He only went there once and wanted to go to Care Homes after that. It was a real shame but he seemed very alone at the Hospice, and very sad.

Marie x

[Yvonneandgeorge in reply to Marie_14]

George would stay in bed all day, we don't let him at home, if he is in bed all the time and awake all night, we do t want this when he comes home, what would be the point. Yvonne x

[Auddonz]

Looks lovely, hope you are resting.

Love,

Audrey (aka auddonz)

[Satt2015]

Looks beautiful Yvonne! How are you and George doing? X

[Yvonneandgeorge in reply to Satt2015]

Amanda we are ok, George wants to come home, but have told him no not at the moment, not been able to sleep, think I will take a sleeping tablet tonight xxxx

[Satt2015 in reply to Yvonneandgeorge]

Bless you darling, it's absolutely heart wrenching isn't it? I hate Psp with a vengeance!! I'm sick of everything! Hope you get some sleep sweetie x

[Yvonneandgeorge in reply to Satt2015]

Going to take a tablet and go to bed soon . Hope you and your mum are ok. Hope your dad is ok. I hate PSP so much, taken so much away xxxxx

[Satt2015 in reply to Yvonneandgeorge]

Hope you managed to sleep Yvonne!?! Mum is doing pretty well thanks and dad bless him just carries on but is getting very confused, one minute seems ok and then not! Agree Psp takes everything away in a very wicked fashion! Hateful and oh so bloody cruel! Hope you do something nice today!! X

[Bhill46 in reply to Yvonneandgeorge]

Do take sleeping pill so you can get the rest needed to cope. I was unable to sleep for two months which led to a serious break down. So excellent you have this great care for your husband in such a lovely setting - the support will be so helpful in continuing the journey. BHill46

[Kevin_1]

I think I know that hospice!

6 stars at least.

I hope you are getting some rest too.

Kevin

XX

[Yvonneandgeorge in reply to Kevin_1]

Yes trying to relax, have been going up everyday for 2-3 hours. All good thank you xxxxx Kevin it is so lovely xxxx

[Kevin_1 in reply to Yvonneandgeorge]

Some of these places are wonderful beyond expectations

Good places to be.

I know it won't be easy being alone for a while. When Liz has been away the house has seemed horribly empty.

I hope ypu have some nice tings planned. Though my number one has always been planning sleep.

Wishing you both the very best.

Kevin

XX

[Yvonneandgeorge in reply to Kevin_1]

Thank you Kevin, I agree sleep would be lovely just need to shut my brain down x

[Katiebow]

That looks so lovely Yvonne and I do hope you manage to relax and enjoy some downtime. Look after yourself and refresh for when he comes home.

Love Kate xxx

[Yvonneandgeorge in reply to Katiebow]

Trying, go up every day he looks so unhappy xxxx

[Katiebow in reply to Yvonneandgeorge]

Oh dear, must make you feel so guilty and that makes respite difficult. Is there no end to the problems this wretched disease brings.

K xxxx

[Yvonneandgeorge in reply to Katiebow]

I hate PSP x

[NanBabs in reply to Yvonneandgeorge]

Me too !! But I am so pleased you are having some respite while George is being well cared for too.

xx

[Yvonneandgeorge in reply to NanBabs]

Well feeling really stressed that he is in there, but it is for his own good, hopefully. I slept until 10.20 today xxxx went to go and visit had to come home there was an accident on the M11 so much traffic, going to try again later . Yvonne xxxx

[doglington]

Looks good. I know what you mean. When I have respite I relish the freedom from responsibility and then find I think of him and how it should have been in the space I am left with !!! All I see is happy couples. - - -

And, however good the Hospice , none of us wants to leave them.

Try to make the most of it.

love, Jean xx

[Yvonneandgeorge in reply to doglington]

Jean it is so unfair, we worked hard to make our children lives better, and for us to enjoy our retirement, then along comes PSP. Yvonne xxxx

[doglington in reply to Yvonneandgeorge]

That's right. The loss of our future.

xx

[Yvonneandgeorge in reply to doglington]

Jean just want to be able to travel with George, to do the things we said we would do. Yvonne xxx

[Hidden]

Lovely. I've managed to get dad's Dr to refer him to st peters hospice for one day a week so really looking forward to him going there x (hoping it may lead to longer respite care)

[JantheNana]

I can't imagine some respite.I think I would be "at loose ends" wondering how to make best use of my time-like when my children were babies and when they were down for a nap.You want to get rest but then keep thinking of all the things you could be doing!

I am a PSP hater too!

[Yvonneandgeorge in reply to JantheNana]

So true you think about all those little jobs that never get done, our house is so tidy, everything up to date xxxx