A Year with PSP

I am a 68 Year old female. Two children, a daughter48, and a son,44. My daughter lives in the state of Georgia,about 7 hrs. away. I live in The northshore of Lake Pontchatrain,about 30 or less miles from New Orleans. Both my children are married,I have 3 grandchildren. My daughter has1 son and my son has 2 a daugther and a son.

Love to All,

Susan

11 Replies

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  • Hi susan

    Wecolme to the most amazing site where you will find new friends advice and support

    Always somebody here that will help

    Sue xx

  • Susan welcome to the site. There are lots of very kind and caring people who will answers questions you might have. Have you got other family near you?

    There is a song about your lake! Now I know where it is thanks to you.

    Marie x

  • No, Marie,I don't have any other family near me.

  • Susan welcome to the family, best place ever, my husband was diagnosed in 2014 been a tiring journey xxxx

  • Hello Sue I am glad you found this forum-you can get SO much information here. My husband was diagnosed with PSP a little over a year ago after 8 yrs diagnosis of Parkinsons..My best advice is to take one day at a time.

  • Welcome. I hope you find this site as helpful as I have.

    Jean x

  • Hi Susan. Sorry you're in the position of having to be part of this forum. However, as the others have said, it's a wonderful friendly group of people all struggling with these horrendous diseases. There is usually someone with experience of whatever you are going through and are only too happy to give advice. My husband has CBD and was only diagnosed in Jan 2016 but had symptoms well before that time. My advice is to try to deal with today and not to look too far into the future. Take care.

    Margaret

  • Hello,Susan -

    Welcome to your best lifeline! This site is the thing that can keep your head above water when you feel like you're sinking. I lost my husband and Christmas eve, after a long hard battle with PSP. As you can see, I am still on the site. I did not post often, but I read people's posts all the time and he gave me strength.

    By the way, I am in Atlanta, Georgia. The journey is more difficult when you don't have family very close. I understand that, because it was that way for me.

    Hold on, it's 1 foot in front of the other right now. When I was in the depths of despair, it was hard to understand that it was not going to be that way forever.

    Hugs,

    Horse girl

  • Hi Susan,

    Welcome to our group...wished it were under better circumstances. You'll find plenty of support and information here from experienced caregivers and even patients with PSP, such as myself.

  • Thanks to all who replied to me. Thank you for All your advice.

    Love to all,

    Susan

  • Welcome to the site Susan you will find it gives you love and support to help you through this journey. Mine and Ben's families also live a distance away and it does make it much harder, I would love if our children or brothers/sisters could pop by but it is always overnight stays which means meals and bed changing, more to add to the workload. Nevertheless I do love when they come to stay, it makes our world seem more normal and makes me want to get out and about more with Ben in the wheelchair. It is a lonely place in the world of PSP. Keep posting as people are always willing to share stories and advice.

    Love Kate xxx

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