Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for November 2016

final stages of psp

my dad has been suffering with psp for a long time in only the last few months he has gone from still having his wits about him joking able to talk but slowly...

my dad has been suffering with psp for a long time in only the last few months h...

•7 years ago

psp final stages

my dad has been suffering with psp for a long time in only the last few months he has gone from still having his wits about him joking able to talk but slowly...

my dad has been suffering with psp for a long time in only the last few months h...

•7 years ago

Botox for contorted fingers and hand

Hello, My dad's hands are contorted to the point he cannot use them for much. I believe it is the psp. He tried botox for his leg cramps and it didn't work...

Hello, My dad's hands are contorted to the point he cannot use them for much. ...

•7 years ago

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Cure PSP Presentation

I came across this presentation from Cure PSP, a bit scientific but very informative. https://youtu.be/qrbxb2pwPTo

I came across this presentation from Cure PSP, a bit scientific but very informa...

•7 years ago

CBD diagnosis

I am new to the site and live in south Manchester Recently diagnosed with CBD but have no idea of the timeline yet and look forward to any advice ,

I am new to the site and live in south Manchester Recently diagnosed with CBD b...

•7 years ago

Fire Risk

Yes, that's something else we need to be aware of! I had the fire service come in on Saturday to give our house a free fire check, set up by our care company....

Yes, that's something else we need to be aware of! I had the fire service come ...

•7 years ago

Visually impaired

Does anyone know if the sight loss that comes with PSP qualifies to be registered as partially sighted? Lots of love Debbie xxx

Does anyone know if the sight loss that comes with PSP qualifies to be registere...

•7 years ago

Eye problems

Thank you for the replies I received re having Botox injections to help with droopy eyelids. My mum had the injections last Monday and I'm happy to report that...

Thank you for the replies I received re having Botox injections to help with dro...

•7 years ago

How do you pray or keep hopeful?

My sister is in the hospital. My 16-year-old niece is staying with other relatives in town. I'm glad for her to have this opportunity to be away from the...

My sister is in the hospital. My 16-year-old niece is staying with other relativ...

•7 years ago

Bed sores

Hi there. My hubby sits in his riser/ recliner nearly all day. He wears a convene and tena pants with liner for accidents of both kinds. He now has a very sore...

Hi there. My hubby sits in his riser/ recliner nearly all day. He wears a conven...

•7 years ago

Another night of no sleep

Well George has another urine infection, I think now he has another chest infection, he is really agitated, I phoned 111 they are going to get someone to ring...

Well George has another urine infection, I think now he has another chest infect...

Yvonneandgeorge

•7 years ago

The PSP Chronicles

https://wordpressco900.wordpress.com/2016/02/06/the-beginning-continued-4/ The above is the link to my journal/blog. daddyt

https://wordpressco900.wordpress.com/2016/02/06/the-beginning-continued-4/ The a...

•7 years ago

A special birthday

Hi, it's S's son birthday in a couple of days. So invited him, his wife and S's grandson for dinner tonight. I don't know if I did right, but decided S should...

Hi, it's S's son birthday in a couple of days. So invited him, his wife and S's ...

•7 years ago

Timing!

Frustration ++ does anyone else have battles over timing. Hubby diagnosed with PSP 3,5 years ago. Mobilises ( unsafely / independently) around house and...

Frustration ++ does anyone else have battles over timing. Hubby diagnosed with...

•7 years ago

Detecting UTIs

Hi I came across this: https://www.tenadirect.co.uk/support-products/support-products/u-test/tena-u-test/ Expensive! It seems like a good idea to be able to...

Hi I came across this: https://www.tenadirect.co.uk/support-products/support-pro...

•7 years ago

Dying by installment plan.

I have had a number of step downs since I last wrote here. My eyesight is worse, but I can still manage T.V. One of the new symptoms is 'Dead' Hands and feet....

I have had a number of step downs since I last wrote here. My eyesight is worse,...

•7 years ago

Special Time ❤️

Mum and my daughter Grace . Took mum out for some fresh air to a local National Trust .. Packwood House. It was lovely to see a smile! ❤️

Mum and my daughter Grace . Took mum out for some fresh air to a local National ...

•7 years ago

Dads finally at rest after 8 and half years suffering from CBD.

Hi everyone not been on for the last 10 months as its been an awful rollercoaster watching my dad deteriorate. He passed away on Thursday morning at 7.00am and...

Hi everyone not been on for the last 10 months as its been an awful rollercoaste...

•7 years ago

Waiving @ jillannf6

Hi Jill I love to see your posts and likes. They are supportive and precious. Warmly and with love Kevin and Liz :)

Hi Jill I love to see your posts and likes. They are supportive and precious. Wa...

•7 years ago

Uti and the hallucinations

Yesterday was the worst day I have ever had - nurses came in the morning to wash / change mum for the 1st time and all seemed ok but about and hour or so after...

Yesterday was the worst day I have ever had - nurses came in the morning to wash...

•7 years ago

Respite Cometh!

Last thing yesterday we got a phone call from the CHC Team. There is a respite bed on Monday for a week or a fortnight. Liz and I looked at each other and both...

Last thing yesterday we got a phone call from the CHC Team. There is a respite b...

•7 years ago

First fresh air for 2 weeks

Managed to take M out for a walk in the fresh air for first time in 2 weeks (combination of bad weather and chest infection). New winter wear for M and her...

Managed to take M out for a walk in the fresh air for first time in 2 weeks (com...

•7 years ago

CUREPSP Live Q & A Session on Facebook

Excellent Q & A session on Facebook by Dr Alex Klein, of CurePSP. Alex talks about the common concerns regarding PSP and related disorders. Some content...

Excellent Q & A session on Facebook by Dr Alex Klein, of CurePSP. Alex talks ab...

PSPA•7 years ago

worst night ever

Last night I received a call from my mother in laws caregiver, she was out of control with anxiety. I left work and went over, I didnt know what I would walk...

Last night I received a call from my mother in laws caregiver, she was out of co...

•7 years ago

PBA

pseudobulbar affect, which my inappropriate laughing upsets my wife and is affecting our marriage. Does any one else have a similar problem? If so how do you...

pseudobulbar affect, which my inappropriate laughing upsets my wife and is affec...

•7 years ago

Smoothies

This may seem a bit odd but two weeks ago I started to buy Smoothies for my hubby. He was struggling to drink even with the beaker which restricts the amount...

This may seem a bit odd but two weeks ago I started to buy Smoothies for my hubb...

•7 years ago

Blood pressure

Hi everyone only posted once before, so still new. My husbands blood pressure is high and I wondered if this was something that happened with PSP?

Hi everyone only posted once before, so still new. My husbands blood pressure is...

•7 years ago

Exercise

Does anyone find exercising helps balance

Does anyone find exercising helps balance

•7 years ago

PSP

I was eventually diagnosed with PSP this year after 6 years of being diagnosed with Parkinsons. My symptoms have gotten worse in the last two months my speech...

I was eventually diagnosed with PSP this year after 6 years of being diagnosed w...

•7 years ago

Finding maddie

Hi there. I've been In touch with maddie from North harrow and ive lost her details. If anyone knows her would they be kind enough to say I'd like to get in...

Hi there. I've been In touch with maddie from North harrow and ive lost her de...

•7 years ago

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