Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for November 2016

I don't know where to start.

My Dad was diagnosed with PSP a few months ago, been ill for a couple of years, the trouble is, he seems to be deteriorating at a frightening rate and I am the...

My Dad was diagnosed with PSP a few months ago, been ill for a couple of years, ...

Stormtrooper_Rog

•8 years ago

10 Replies

A difficult subject

I asked a question of Robin Riddle of CurePSP. Brain donation is presented as an option for PSP and CBD patients in the USA and they will facilitate it...

I asked a question of Robin Riddle of CurePSP. Brain donation is presented as a...

Christine47

•8 years ago

12 Replies

It's been a while

Sorry folks, I haven't been on much since going to Australia at end of Sept for 2 weeks to visit my daughter, son-in-law and 2 grandchildren. W went to stay...

Sorry folks, I haven't been on much since going to Australia at end of Sept for ...

Nanny857

•8 years ago

9 Replies

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We sent Colin off with a bang as planned

Nearly 200 people turned up to say goodbye to Colin on Friday. Our church seats 164 and folding chairs were put up in the area where coffee is served. 16 of...

Nearly 200 people turned up to say goodbye to Colin on Friday. Our church seats...

NannaB

•8 years ago

52 Replies

Diarrhoea

Bit of a gross post...sorry.... My dad, up until now has been ok continence-wise...maybe a couple of wees when he couldn't get to the loo in time. But, over...

Bit of a gross post...sorry.... My dad, up until now has been ok continence-wis...

sasmock

•8 years ago

15 Replies

This site deserves a Nobel Peace prize.

Last night when I could not sleep I read through lots of old and new posts. It hit me suddenly we are empowered by each other turning us from victims to...

Last night when I could not sleep I read through lots of old and new posts. It h...

Noella21

•8 years ago

7 Replies

Vitamin supplements

Was just wondering if I should get some vitamin s for my husband he is on siminet a low dose and pain killers but is doing well at the moment , do the...

Was just wondering if I should get some vitamin s for my husband he is on simin...

allotmentartist

•8 years ago

7 Replies

neck pain

Hi Everyone, don't write very often, but just wandered if anyone else has experienced the same problem my wife is having, along with not being able speak, as...

Hi Everyone, don't write very often, but just wandered if anyone else has experi...

Hidden

•8 years ago

3 Replies

Afraid in my own home.

Today I had to let go the care worker we both had gotten very attached to. I had some issues over all the cell phone calls coming in upsetting her from a...

Today I had to let go the care worker we both had gotten very attached to. I had...

Noella21

•8 years ago

13 Replies

Hello

Hi. Just came across this site and am very pleased. PSP isn't very common and sometimes it can be lonely. My husband was diagnosed this year but we have been...

Hi. Just came across this site and am very pleased. PSP isn't very common and so...

PSPwife

•8 years ago

62 Replies

The PSP Chronicles- The Beginning Continued... Nov 04/15

This is the second entry in my Journal/blog...The PSP Chronicles. You can read on if your interested by clicking on "next" at the bottom of the page.

This is the second entry in my Journal/blog...The PSP Chronicles. You can read o...

daddyt

•8 years ago

10 Replies

And the Oscar goes to..........

Ouch! Hit that brick wall again! Think S's are bowels are on that slippery road to incontenance. For months now, I have, with the help of the hospice, trying...

Ouch! Hit that brick wall again! Think S's are bowels are on that slippery road ...

Heady

•8 years ago

25 Replies

Santa Dash for PSP

After my daughter Amanda's brilliant effort and raising ove £500 for PSPA doing the velocity zip wire in August, my youngest brother Craig is now going to do...

After my daughter Amanda's brilliant effort and raising ove £500 for PSPA doing ...

madbabs78

•8 years ago

4 Replies

The PSP Chronicles

I know sometime ago I was asked for a link to my journal/blog. My apologies... I don't think or remember getting around to do so. I think I might have it...

I know sometime ago I was asked for a link to my journal/blog. My apologies... I...

daddyt

•8 years ago

4 Replies

Stepping back a little

My sister with PSP was not able to attend her 16-year-old's orchestra concert last night. My niece appeared to take the evening well and was composed and...

My sister with PSP was not able to attend her 16-year-old's orchestra concert la...

Pagesofwords

•8 years ago

1 Reply

Thinking of you.

Just wanted to write a short post full of love for Bev aka NannaB & her family. Thinking of you all today as you lay your beloved Colin at peace & flying...

Just wanted to write a short post full of love for Bev aka NannaB & her family. ...

Spiralsparkle

•8 years ago

6 Replies

Why

Why do users of this site write notes for interested respondents and thene make it such that one has to log in to read them?

Why do users of this site write notes for interested respondents and thene make ...

Sayer

•8 years ago

2 Replies

Mojo

Morning! Or evening wherever you lovely people are, Got my mojo back, just bollocked (sorry!!) the equipment supply manager for sending four faulty mattresses...

Morning! Or evening wherever you lovely people are, Got my mojo back, just boll...

Julieandrog

•8 years ago

5 Replies

Feeling broken hearted

Today has been a bad day. We have had a couple of weeks of being stable but today I feel my world change again for the worse and I have lost another bit of her...

Today has been a bad day. We have had a couple of weeks of being stable but toda...

Sophiejo

•8 years ago

13 Replies

A little reprieve

I know you all have been through it. The roller coaster.......but today is a good day and I've been given a little reprieve. Charles is happy and I'm taking...

I know you all have been through it. The roller coaster.......but today is a go...

Cuttercat

•8 years ago

19 Replies

Rog

Thank you all so much for your kind words whilst Rog was so ill. Quite bizarre but the first thing I did when he was so poorly was to reach out to you all. He...

Thank you all so much for your kind words whilst Rog was so ill. Quite bizarre b...

Julieandrog

•8 years ago

19 Replies

Need to accept others as they are

I woke up this morning with a sense of new knowledge that I need to accept the people in my family the way they are in regard to my sister with PSP. I want her...

I woke up this morning with a sense of new knowledge that I need to accept the p...

Pagesofwords

•8 years ago

8 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2016

I don't know where to start.

A difficult subject

It's been a while

We sent Colin off with a bang as planned

Diarrhoea

This site deserves a Nobel Peace prize.

Vitamin supplements

neck pain

Afraid in my own home.

Hello

The PSP Chronicles- The Beginning Continued... Nov 04/15

And the Oscar goes to..........

Santa Dash for PSP

The PSP Chronicles

Stepping back a little

Thinking of you.

Why

Mojo

Feeling broken hearted

A little reprieve

Rog

Need to accept others as they are

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive