Visually impaired: Does anyone know if the... - PSP Association

PSP Association

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Visually impaired

Debbieann profile image
13 Replies

Does anyone know if the sight loss that comes with PSP qualifies to be registered as partially sighted?

Lots of love

Debbie xxx

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Debbieann profile image
Debbieann
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13 Replies
Heady profile image
Heady

I don't know Debbie, S can still see reasonable well. Although a couple of years ago I did register him with the Royal society for the blind, to get their taking books and that was no trouble.

Lots of love

Heady

Georgepa profile image
Georgepa

Short answer is "yes " V is registered as partially sighted

Debbieann profile image
Debbieann in reply to Georgepa

Thank you, there's not many benefits, but I see there's a tax allowance, every little helps so they say

Debbie x

cabbagecottage profile image
cabbagecottage in reply to Debbieann

Tax a,low acce for what Debbie

Debbieann profile image
Debbieann in reply to cabbagecottage

I may have read it wrong, i don't think it applies to partially sighted

Debbie x

Georgepa profile image
Georgepa in reply to Debbieann

It doesnt apply to the partialy sighted ,you are right .

cabbagecottage profile image
cabbagecottage in reply to Georgepa

John cannot see the Tv anymore hasn't for a v long time cannot raise his eye , mostly closed or opened involuntary. Still no real sight . Glasses use less how would u register would u know George

Georgepa profile image
Georgepa in reply to cabbagecottage

V was under the eye infirmary at Royal Devon and Exter Hospital .It was the opthalmic consultant who registered her .

Debbieann profile image
Debbieann in reply to cabbagecottage

I think you need doc/ optamathologist to fill in form CV1, then you register with your local council, sorry I don't know, I've only just begun to look into it, like everyone just trying to find out what help is out there and how to get it

Love Debbie xxx

easterncedar profile image
easterncedar

Dear Debbieann,

I am answering this knowing it won't have much use for you except perhaps by way of comparison, but the answer is yes for certain benefits here in the US. Although he passes some eye tests really well, because he puts forth a terrific effort to concentrate on the chart, my guy can't sustain the effort to focus, can't read, and can't see down, and his ability to process visual information cuts out at random intervals, so he feels quite blind sometimes, which frightens him terribly, of course. The ophthalmologist has no idea how bad his sight really is, and was changing his prescription a lot every few months without apparent regard for his inability to truly answer her questions about which of the trial lenses made his sight better or worse. I cancelled his last 6-month appointment. The process ultimately only distressed my sweetheart, as the new lenses always disappointed him.

But his doctor takes my word about his eyesight, and so my guy was given a free audio book reader (audio books get sent at intervals from the library through the BARD program, for those who might be reading this in the States), a talking watch, a talking telephone and so on. I was very pleased by the support we were given on this front.

Good luck to you, Debbieann. I hope you get what help may be available to you.

Peace, Ec

Debbieann profile image
Debbieann

F's eyes sight is very poor, like your guy, he can't focus to read, see down, has trouble signing anything! did wonder if there'd be any aides, if he was registered, he's got a talking watch which we bought sometime ago( I think it's great when he wants to know the time in the middle of the night, haha! Talking telephone sounds like a good idea! A talking remote for the TV would be great!!

Love Debbie xx

JMDean profile image
JMDean

From my understanding, The vision issues are primarily about Eye Control, particularly moving from up to down more than right to left. It's what's known as "decreased vertical saccades " and it's one of the things your doctors testing when they're having you follow their finger with your eyes is there moving to around your field of view. There could be other issues with our control affecting vision including changes in "convergence" which might result in double vision. But I'm not sure that there's a difference in actual visual capacity per se, it's more about motor control of the eye muscles.

Duffers profile image
Duffers

I think they look at everyone differently. My hubby has absolutely no peripheral vision and different focus in each eye but hes not classed as partially sighted so try and see. No use at all I'm afraid. Goid luck. Marie

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