Posts - PSP Association | HealthUnlocked

PSP Association

9,399 members • 11,426 posts

All posts for November 2016

Communication App

Hi Everyone.....hope today is a good day for you..... I just wanted to ask some advice regarding communication apps. My dad's speech for the past year has been...

Hi Everyone.....hope today is a good day for you..... I just wanted to ask some ...

Weec

•8 years ago

12 Replies

OUR DARLING NEW GRANDSON, JOSHUA FREDERICK

HELLO ALL...THIS LITTLE DARLING IS MY DAUGHTER MIRIAM'S FRIST.... BORN ON 13TH OCTOBER IN LIMOGES, BY C SECTION -- HE IS JUST ADORABLE AND I AM GOING TO...

HELLO ALL...THIS LITTLE DARLING IS MY DAUGHTER MIRIAM'S FRIST.... BORN ON 13T...

shasha

•8 years ago

23 Replies

Update to claiming discounted council tax for Severe Mental Impairment

Hi everyone, we have only lived in the house we are in now, for 3 years and I have already successfully, been able to claim discounted council tax and back...

Hi everyone, we have only lived in the house we are in now, for 3 years and I ha...

DenB

•8 years ago

4 Replies

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Falling a new hurdle

I feel so guilty today - mum has fallen twice this morning which is new first time was getting her out of bed and her skin is that thin just the pressure of me...

I feel so guilty today - mum has fallen twice this morning which is new first ti...

Sophiejo

•8 years ago

9 Replies

Peristeen???

Hi, has anyone heard of this or used one? It is a rectal catether, pipe going up inside, water is pumped in and washes out the bowel. S's bowel nurse, has said...

Hi, has anyone heard of this or used one? It is a rectal catether, pipe going up...

Heady

•8 years ago

47 Replies

Info on the Vest?

Hi all, I just saw an old post that mentioned something called "the Vest" which help clears mucus from the lungs. Has anyone tried this product? My dad is...

Hi all, I just saw an old post that mentioned something called "the Vest" which...

carlam

•8 years ago

3 Replies

Personal Assistants not Care Agencies?

I was speaking to the CHC nurse last week about care agencies and the 'deplorable state of the industry' as she put it. There is a complete dearth of Care...

I was speaking to the CHC nurse last week about care agencies and the 'deplorabl...

Kevin_1

•8 years ago

36 Replies

Rollercoaster and 'Please adjust my head'.

Waiving hello to folk - again. (I have just finished this post and have come back to the top to say that this is just 'living with PSP' - The sound of the wind...

Waiving hello to folk - again. (I have just finished this post and have come bac...

Kevin_1

•8 years ago

49 Replies

MEDS

Out of curiosity I would like to do a check of the meds that your doc is giving for PSP My Aunt Bev Takes Carbidopa-Levodopa 25-250 tab 5 times a day and...

Out of curiosity I would like to do a check of the meds that your doc is giving ...

kryste

•8 years ago

7 Replies

Deleted

Hi Kevin_1 Can't access your post. Red banner says post been deleted! Hang in there! You don't need this extra hassle!!!! Hugs! Jen

Hi Kevin_1 Can't access your post. Red banner says post been deleted! Hang in th...

honjen43

•8 years ago

5 Replies

Psp

Hi everyone hope your all aswell as can be, I have a question I'm just wanting some advice with... lately my brother has been staying with my Mam on a night...

Hi everyone hope your all aswell as can be, I have a question I'm just wanting s...

Maxine12

•8 years ago

20 Replies

Cure PSP Information Session

There is special session on Facebook tomorrow in the US where they will be addressing questions regarding PSP. I'm sure it will be very informative. Facebook...

There is special session on Facebook tomorrow in the US where they will be addre...

am2015

•8 years ago

14 Replies

Motoring!

Oh well the second hand super sleek stylish Fiat Doblo arrived yesterday, I'd taken F with me to view and test drive, explained all along what we needed to...

Oh well the second hand super sleek stylish Fiat Doblo arrived yesterday, I'd ta...

Debbieann

•8 years ago

12 Replies

My mother with PSP

My mother , a 69-year old lady was diagnosed with PSP some five years ago.We have been giving Amantrel(100mg) capsules twice daily, but there is hardly any...

My mother , a 69-year old lady was diagnosed with PSP some five years ago.We hav...

santoshbulusu

•8 years ago

6 Replies

Sunday

Why does things always happen on Sunday, I feel like throwing in the towel, just walking out the door, really feel I can't cope, George opened his catheter all...

Why does things always happen on Sunday, I feel like throwing in the towel, just...

Yvonneandgeorge

•8 years ago

68 Replies

A Bit About Me!

I'm 68 yrs old, male, married with 2 children and have 5 grand children. I have also been an amputee for nigh on 16 yrs - right leg, high above knee - due to...

I'm 68 yrs old, male, married with 2 children and have 5 grand children. I hav...

Suffolk_Syd

•8 years ago

13 Replies

Problem with eyes..

Hello, Just wondering if anyone out there has experience of having Botox to help with involuntary eyelid dropping. My mum is due to visit the Botox clinic at...

Hello, Just wondering if anyone out there has experience of having Botox to help...

CM2015

•8 years ago

6 Replies

Im back

Just got computer up and running hope all is well. As for Aunt Bev and I we are doing fine. Heres an update , I got Aunt Bev a nuroligest hes young and full...

Just got computer up and running hope all is well. As for Aunt Bev and I we are...

kryste

•8 years ago

7 Replies

Men's incontinence problems.

Any help on dealing with my 41 year old sons incontinence?? Please

Jenny1975

•8 years ago

16 Replies

We are going to be Mad soon!!!

Me and my mother are on the edge.. my dad full power now is on his arms .. his arms are interfering in every actions we do to him making what we want to be...

Me and my mother are on the edge.. my dad full power now is on his arms .. his a...

MaiSalah

•8 years ago

22 Replies

Withholding Fluids and Food, what's right what's wrong please help!

My dad's wife is a couple years younger than me, they've been married over 30 years, my Mama died at 34 from aggressive cancer. Dad's wife and me are in our...

My dad's wife is a couple years younger than me, they've been married over 30 ye...

GonnaMissDaddy

•8 years ago

17 Replies

Update on carers

Hi all Thanks to everyone who took time to comment on my post earlier in week about our agency giving 5 days notice. The social worker has worked so hard...

Hi all Thanks to everyone who took time to comment on my post earlier in week a...

Spiralsparkle

•8 years ago

25 Replies

First post

Hi all my name Luke I'm 24 and have been on here for only a few months been reading all your post and comments and finding so much of it helpful....

Hi all my name Luke I'm 24 and have been on here for only a few months bee...

Lukepotty123

•8 years ago

34 Replies

The PSP Chronicles

Tim Brown November 7 at 4:27pm · WordPress · The next installment of The PSP Chronicles... this is where the real story begins. The Beginning continued…...

Tim Brown November 7 at 4:27pm · WordPress · The next installment of The PSP ...

daddyt

•8 years ago

16 Replies

President

Hi to all our America family are you all happy with the outcome of the election? XXXX

Hi to all our America family are you all happy with the outcome of the election?...

Yvonneandgeorge

•8 years ago

56 Replies

Incontinence?

Charles is wetting his depends more and more. Is this the next stage? What can I do to help? Cuttercat

Charles is wetting his depends more and more. Is this the next stage? What can ...

Cuttercat

•8 years ago

24 Replies

High Blood Pressure with CBD

Do you have high blood pressure with CBD (CBS, CBGD)? I have been to the ER three times in the last 10 days for the pressure that seems to be sitting at...

Do you have high blood pressure with CBD (CBS, CBGD)? I have been to the ER thr...

Essie23

•8 years ago

2 Replies

Really annoyed & upset.

I need to let off steam I'm afraid. We've had some issues with the care agency and getting no where consistently trying to sort it out. My messages were...

I need to let off steam I'm afraid. We've had some issues with the care agency ...

Spiralsparkle

•8 years ago

55 Replies

Feeling scared and not knowing what to do

My dad has been diagnosed with psp. he's getting worse every time I see him. I feel so helpless I try and talk to him but he just says he's fine. my brother is...

My dad has been diagnosed with psp. he's getting worse every time I see him. I f...

Libbyjlou

•8 years ago

8 Replies

WAV car

Advice again please, my car has been written off, so I am sort of forced into buying a WAV sooner than I anticipated, and don't have much opportunity to shop...

Advice again please, my car has been written off, so I am sort of forced into bu...

Debbieann

•8 years ago

9 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2016

Communication App

OUR DARLING NEW GRANDSON, JOSHUA FREDERICK

Update to claiming discounted council tax for Severe Mental Impairment

Falling a new hurdle

Peristeen???

Info on the Vest?

Personal Assistants not Care Agencies?

Rollercoaster and 'Please adjust my head'.

MEDS

Deleted

Psp

Cure PSP Information Session

Motoring!

My mother with PSP

Sunday

A Bit About Me!

Problem with eyes..

Im back

Men's incontinence problems.

We are going to be Mad soon!!!

Withholding Fluids and Food, what's right what's wrong please help!

Update on carers

First post

The PSP Chronicles

President

Incontinence?

High Blood Pressure with CBD

Really annoyed & upset.

Feeling scared and not knowing what to do

WAV car

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive