Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for December 2015

Christmas

Just would like to wish everyone a good christmas and enjoy the best way thatyou can, its my 2nd christmas without my wonderful mum christmas eve ill be...

Just would like to wish everyone a good christmas and enjoy the best way thatyou...

•8 years ago

Starting Salsalate for PSP

My wife has been suffering from PSP for several years with the first symptoms appearing in 2006! Apparently it is a slow evolving form of PSP. Was not...

My wife has been suffering from PSP for several years with the first symptoms ap...

•8 years ago

Fun and games with Christmas tree

Well it is Christmas even though some of us don't feel like it so I decided today I should put up our small tree that we have had for a number of years, to...

Well it is Christmas even though some of us don't feel like it so I decided toda...

•8 years ago

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Starting Nilotinib for PSP

Hi, Has anyone started Nilotinib for PSP.We have started it off label. Thanks

Hi, Has anyone started Nilotinib for PSP.We have started it off label. Thanks

•8 years ago

Harry Benjamin arrived safe and sound yesterday.

Our scrumptious little grandson arrived into the world yesterday. Off to Bristol tomorrow for our first cuddle, can't wait. Love to all , Kate xxx

Our scrumptious little grandson arrived into the world yesterday. Off to Bristol...

•8 years ago

Christmas!

Well I have managed to get a little Christmas spirit and my tree is up, took about a week to do in bits and bobs, but it's looking good if I say so myself,...

Well I have managed to get a little Christmas spirit and my tree is up, took abo...

•8 years ago

Hospital again

Well we have been at the hospital all day again today, George fell over in the night, got him back into bed after a struggle, he seemed ok, when the careers...

Well we have been at the hospital all day again today, George fell over in the n...

Yvonneandgeorge

•8 years ago

PSP Greater Manchester

I know PSP is a rare condition but i wondered if there was a group in Greater Manchester?

I know PSP is a rare condition but i wondered if there was a group in Greater Ma...

•8 years ago

PSP has left this home!

My Charles is free. He can walk again, talk again, think for himself and no more caregiver for him. He passed 12/14/2015. He was diagnosed with Parkinson's on...

My Charles is free. He can walk again, talk again, think for himself and no more...

•8 years ago

A sad day ... signed up with Hospice

I finally gave in to the doctor's request to allow hospice to provide assistance. Today, a hospice nurse, a hospice social worker, and a hospice Chaplin all...

I finally gave in to the doctor's request to allow hospice to provide assistance...

•8 years ago

Medication

I've been reading postings, do your loved ones get medication? Confused.com!

I've been reading postings, do your loved ones get medication? Confused.com!

•8 years ago

PSP and having a PEG

dear everyone considering a PEG. My husband has had one for 14 months now-first one was shocking-he was in pain-but think it was badly placed he accidently...

dear everyone considering a PEG. My husband has had one for 14 months now-first ...

•8 years ago

Restless nights

I have been reading the posts of all you lovely people for several months now. My mum is 82 and my dad of 84 has looked after her for at least five hard years....

I have been reading the posts of all you lovely people for several months now. M...

•8 years ago

Chin or neck support ?

Can anyone offer suggestions to help P stay a bit more upright as he is increasingly slumped forward with his chin on his chest. I was wondering if there are...

Can anyone offer suggestions to help P stay a bit more upright as he is increasi...

•8 years ago

Panic Attack

Have any of you hard- working carers had panic attacks? I am assuming that is what they are. I feel violently sick and feel as if I am going to faint. (...

Have any of you hard- working carers had panic attacks? I am assuming that is wh...

•8 years ago

RHP?

My husband has been diagnosed for 3 years now and symptoms are getting worse (obviously I suppose). I saw a post about RHP vitamin but can't find the thread....

My husband has been diagnosed for 3 years now and symptoms are getting worse (ob...

•8 years ago

Urine infection

Well George has had another urine infection, started at 3 o'clock in the morning, called 111 at 5.20 to be told doctor would ring back in a couple of hours,...

Well George has had another urine infection, started at 3 o'clock in the morning...

Yvonneandgeorge

•8 years ago

Psp person

Just joined, but been following for a few weeks, my husband got psp, wish we had a psp 'person' somebody, anybody!

Just joined, but been following for a few weeks, my husband got psp, wish we had...

•8 years ago

Keeping focussed

So quiet a bad day yesterday. Early afternoon B vomits a considerable amount of her feed. As she can't spit and I can't get her mouth clear have to call 111....

So quiet a bad day yesterday. Early afternoon B vomits a considerable amount of ...

•8 years ago

I AM SICK FROM THE STRESS AND ANXIETY

I was afraid that would happen an it did. Severe bout of IBS, second one since Don got sick,. Weak as a kitten and don't know what to do. No help. I asked him...

I was afraid that would happen an it did. Severe bout of IBS, second one since D...

•8 years ago

I know it's only the Daily Express but.....

Hi, has anyone seen the Daily Express today? they are talking about a drug that washes the brain of all the crap that build up in the brain for people with...

Hi, has anyone seen the Daily Express today? they are talking about a drug tha...

•8 years ago

Save your postage stamps for the PSPA

In case you don't use Facebook, I thought I'd post this. I don't think the link will work but full details can be found on their website. Start collecting,...

In case you don't use Facebook, I thought I'd post this. I don't think the link...

•8 years ago

Miss

My dad is on the last stages of having psp. Has it is rare we are unsure how long this stage lasts as it's heartbreaking to see him deteriorate. He has had...

My dad is on the last stages of having psp. Has it is rare we are unsure how lo...

•8 years ago

Saliva Suction Machine

Well Aunt Bevs machine like the dintest has to suck out the saliva in your mouth works great its gross to clean out but it sure gets the stick saliva that she...

Well Aunt Bevs machine like the dintest has to suck out the saliva in your mouth...

•8 years ago

Argh! Is this normal ?!

Hey all, I generally try to stay positive on here even if I'm losing it in reality but I'm really getting fed up with everything today! Took mum away for a...

Hey all, I generally try to stay positive on here even if I'm losing it in reali...

•8 years ago

Hallucinations and PSP?

Hi everyone. I am a caregiver for my dad who was diagnosed with PSP 6 years ago. We live in the US and my dad recently started hallucinating (talking to people...

Hi everyone. I am a caregiver for my dad who was diagnosed with PSP 6 years ago....

•8 years ago

Just when things looked ok!

Life had settled down in the time since Bill came out of hospital but yesterday I knew he was not right. He was even more sleepy and so difficult to rouse. At...

Life had settled down in the time since Bill came out of hospital but yesterday ...

•8 years ago

Caring for someone with psp

For years I have always had a holidY with my grandchildren in February how is the best way to get care for my partner while I take this break, I feel I need it...

For years I have always had a holidY with my grandchildren in February how is th...

•8 years ago

Unfair

As I said before George got CHC, which has been very good, for us and so much help. Social services has just stopped the centre that George has been going to...

As I said before George got CHC, which has been very good, for us and so much he...

Yvonneandgeorge

•8 years ago

Special chairs for PSP sufferers

Seeking help from any angle. My mother has the problem that she cannot stay sitting in her chair. She just keeps on pushing herself forwards on the arms of the...

Seeking help from any angle. My mother has the problem that she cannot stay sitt...

•8 years ago

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