Hey all, I generally try to stay positive on here even if I'm losing it in reality but I'm really getting fed up with everything today! Took mum away for a week to Scotland returning yesterday. She really wanted to go and against my better judgement I agreed as figured be last proper holiday. The packing alone was a nightmare and the car journey equally horrendous. Then Scotland offered up rain and storms and strong winds which made the whole thing pretty miserable. But mum hardly slept the whole time, constantly moaning and whining and fussing in bed. Was on antibiotics all week for yet another UTI which I was promised several times would be cleared up by this antibiotic .. She's also noticeably started eating and drinking a lot less all of a sudden and become a lot more hunched over, so pushing her round in her chair in gale force winds as she stared at her knees the whole time felt pretty pointless! (I'm sure I'll look back and laugh at the ridiculousness of it all! Especially the layers she was wrapped in etc!) But the main thing I wondered is do other PSP sufferers constantly moan/groan and wail all the time throughout day and night or is this just mum? She can't surely have another infection as antibiotics just finished and urine dip test negative.. ?! She also is less responsive at times and either yells no or doesn't reply at all. But at other times can talk in full sentences.. I'm thinking maybe she's just tired (as am I !!) and it's just taken it out of both of us but the constant wailing is driving me insane! She also frequently complains about breathing problems which I think is mixture of a dodgy Nostril, PSP, AF heart issue and COPD but the GPs just shrug at me when I ask what I can do to help her. Any advice or word from someone who has the same experiences be much appreciated !!
Thanks all. Happy Monday !!!
Attached is me and mum battling the elements !! we looked a right spectacle if nothing else ! haha