My Charles is free. He can walk again, talk again, think for himself and no more caregiver for him.
He passed 12/14/2015.
He was diagnosed with Parkinson's on 6/12/2012
He was rediagnosed with PSP on 6/14/2015.
He was put on hospice 7/29/2015.
Six months from diagnoses he passed. I can go back as far as 2005 for symptoms. some of the things that happened in his lifetime, he worked on a tracker at the age of 12, he did canal work for a few years, he worked in a metal printing shop for 25 years, he was a Forman for a crane company for 10 years, and he was a truck driver for over 15 years, this was his favorite job.
He smoked until the age of 55. These are some of the things in hi s life time, he would have been 71 in January. He lost his sense of smell about 20 years ago and his sense of taste not long after.
I'm telling you these things about him, so you can see if your loved one can relate to any of these. I know we are always looking for something to click with this disease.
I am holding up, good moments and really bad moments. But I have to say it is a total relief to see him at peace, it's like the stress was just taken off , like you would take off a piece of clothing. We were married for 52 1/2 years. So yes I am feeling the alone thing. Love and hugs to all of you that are still caring for you love one.
RIP my Love