I was just wondering where abouts everybody lives i am in Surbiton Surrey UK
Where is everyone from: I was just wondering... - PSP Association
Where is everyone from
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nellienoonoo
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98 Replies
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i am in sw france LIMOGES TO BE MORE PRECISE .
I am from Ontario, Canada
Where in Ont? My Husband & I also live in Ont. Rog has had PSP for at least 6-8 yrs.
Midland, Ontario. North of Barrie on the beautiful shores of Georgian Bay. Jim was diagnosed with Parkinsons early 2012 and PSP this March. He is on a very fast downhill slide at this time.
Folliot, I am from Sudbury & my Husband, ROGER was diagnosed in 2014 but we know he had it since 2009 or so. Roger is at at a LTF & despite all the care he too has been sliding. My email is gadore@hotmmail.ca
Yes, I understand as I am wearing down myself. It is very difficult transferring from bed. It is a straight pull dead weight. I am going to have to give in soon but there are very few facilities around here. I am trying to hold on but he has lost more weight and some days are worse than others. More bad days than good days now. I am having to puree most of his foods now and supplement with ensure cocktails. When did he go into LTF? My email is jmfolliott@sympatico.ca.
Los Angeles, California USA
I Live in hertfordshire, bishops stortford near stansted airport xxxxx. Anyone live near me would be lovely to meet up? Yvonne xxxx
I live near clacton on sea in essex but home town is northfleet in kent. Janexx
Hi Jzygirl
I live close to your home town.....Higham, near Rochester.
Roy goes to the Hospice...Elenor in Northfleet.
D
I am from a rural area near St. Louis, Missouri, USA.
I live in Courtenay B.C Canada
I am in Wokingham Berkshire.
I check out the postings on this site to help me understand the disease my younger sister has been diagnosed with. Diagnosed two or three months ago, probably had for at least two and a half years. I find this site very informative. We live in Hampshire, UK.
Kent. Near Tunbridge Wells.
Mackay, Queensland. Australia
Kent near Sevenoaks. Quite near NannaB. We are fairly new to this area though as we moved from rural Mid Devon at the end of 2014.
Shetland isles
Is it quite remote, where you live on the Shetland Isles?
DenB
Not really, we live on the mainland about 15 minutes from the airport in the south of the island.
Shetland Isles
Middlesbrough Cleveland
Hi York I'm from Stockton on tees, are you a suffer or a carer if you don't mind me asking, just you live close by and it's nice to know there are other people nearby going through the same thing 
I'm a carer how about you?
I'm also a carer, I look after my mam who has had psp for around 4 years I think, but was wrongly diagnosed until last September.
They originally thought my mam had Parkinson's approx 4yrs ago too do you have any other family that helps. I've two sisters and a brother. Unfortunately my brother is also disabled and lives in the same house as my mother but still does his bit to help bless him
Aww bless!! Yes I have 1 sister and 3 brothers. My youngest brother is 21 and lives with my mam, he finds it hard as he is the one who is there the most to pick mam up off the floor when she falls. I now only live a couple of doors down from them so I can help as much as I can, and the others do help to, it's just so awful to see your mother deteriate before you 
but we do our best and try and laugh about silly things every day. I hope you have good support around you. This site is really good,especially when you need information you can't seem to get anywhere else x
Yes this site is brilliant like you I live on the same road but as my brother wasn't able to pick my mother up we got calls to go and pick her up. Mam can no longer get about unless aided and can only go out in a wheelchair now. we have carers in 4 times a day and one of my sisters is with her 4 days a week and I do the others 3 but find it very hard whilst also doing a full time job in the last month I have cut down to 4 days to help. My mother is still quite upbeat and as you we laugh about the silliest things .the next stage is getting the bathroom turned into a wet room which will help us tremendously.
Hi - I am in New Malden, Surrey, UK. Have not posted yet but am finding the site very helpful whilst coming to terms with my husbands diagnosis - he was diagnosed in February this year.
Hi your very close to me
Hi - yes we are almost neighbours. We enjoy taking a picnic and sitting by the river on the Queens promenade on the Portsmouth Road and of course shop in Kingston quite a bit. This hideous,fairly rare illness makes you feel you are the only person in the world dealing with it so it's strangely comforting to know there is someone close by tackling the same thing.
Hi -i live near the river its lovely there.my husband was diagnosed in May this year it has taken 4 yrs to get the diagnosis My husband goes to Atkinson Morley.He has'nt walked for 2 yrs his balance has almost gone now. and his speech is getting a bit slurred.this disease is a nightmare.
Hi - sounds familiar in the length of time it took for your husband's diagnosis. We struggled to get someone to listen for 4 years and as far as the medical people were concerned if my husband's blood tests were ok then he was ok? So we went from nothing wrong with him, then to Parkinsons, then Lewy Body Dementia to finally PSP. The delivery of the diagnosis was quite blunt - when I said to neurologist I had never heard of PSP he gave us website and told us to go home and find out all we could about it? He also referred us to Neuro rehabilitation team to get sorted out with a weighted walker - my husband has to date never fallen so what possessed him to suggest that still baffles me, Needless to say was very unimpressed with such lack of empathy. We then had to wait 9 weeks to see specialist nurse at St George's, who has been very helpful - we see her every 6 weeks. My husband can still walk, albeit he is slow. His cognition is poor, this was one of his first symptoms along with extreme fatigue and always cold and these were the symptoms we kept presenting with. His double vision is bad and we are waiting for an appointment again at Kingston eye hospital. He had prism lenses in his specs 3 years ago prior to diagnosis, but following 2 cataracts ops needs a new prescription for new specs but can't get this done until prisms sorted out. To get anything done seems to be a battle - it's been 5 months since cataracts done. Do you get help with looking after your husband? I think we are lucky here in the UK in that the support seems to be available - once you get the diagnosis and the trouble with that is by that time we have already gone through a stressful journey with no support. Hey ho - one day at a time.
Tidenham Chase, Gloucestershire, closest town Chepstow (Monmouthshire).
Stockton on Tees. Teeside
I live in Liverpool
Just done the road from you nellienoonoo. I live in Mitcham
I live Nr Newport . S . Wales , UK
Central,Louisiana USA
Right on the coast in Hampshire, over looking the Isle of Wight
I have family on the Isle of Wight
I lived over there for 10 years
Hi Rhuddlan, near Rhyl On the coast in North Wales.
We moved from nearby Rhuddlan 7 months ago to be near family x
Hi, I live in East Sussex, near to Tunbridge Wells.
We live in north east Wiltshire.
Hi, we live in Buxton, Derbyshire.
Hi, We live in Rugby Warwickshire.
Louisville, Kentucky. Home of the Kentucky Derby, the Louisville Slugger Baseball Bat, and Kentucky Fried Chicken (KFC).
Wow i cant believe how near and far everyone lives
But you wouldn't know it would you!
Although so far apart so near on this site.😊
I live in Philadelphia, but I moved my mom here from Chicago. I lived in London from 1987- 2001 and my mom visited us frequently there. My mom always ordered the cheapest food on the menu. I've often wondered if she got psp from visiting me in the UK and ordering foods like oxtail soup!
Hello... I am from Salem, Massachusetts. USA
Atlanta, Georgia USA
Chicago, IL USA
Small town just north of St. Louis .....
Hi all, we are in Driffield, East Yorkshire.
New Brunswick, Canada right in the border of the Province of Quebec.
US, Florida. Having email issue so haven't been on for a few days
We are in Somerset, moved just after symptons started for hubby 18 mths ago, getting to know the area, but lovely having Exmoor on the doorstep and closer to Devon and Cornwall for breaks away
We live in Chilliwack British Columbia Canada.
I finally remember my password lol,So now I have two accounts.I will delete the other.
We Live in Chilliwack British Columbia
I live in Kelowna, British Columbia
Clevedon, North Somerset. UK
We're in a village putside Fethiye, south west Turkey.
outskirts of Stockport, not been on here for a while but nice to be back...x
Hi nanonthenet1 pity we did not meet up when you were in Rhuddlan, we moved from Rhyl Jan14, and had alterations to bungalow over autumn 14. Read your moving home experiences very similar 4 bed house to 2 bed bungalow, lots of memories had to be ditched. Anyway when you say near Stockport you do'nt mean Marple if so that's my home town. Still sorting out my mum's bungalow there hope to sell in Aug hopefully 3rd time lucky. Best wishes Tim
We are in Offerton so not far from Marple, have settled here now but still love to visit friends in Rhyl 😊
Wow we are global. I am in North Wales.
There are a lot of people from America, and quite a few from Canada xxxxx
Des Moines, Iowa and Phoenix, Arizona, U.S.A.
Sutton on Sea, Lincolnshire.
Adelaide, South Australia. I haven't posted on here before. My dad (74) was initially diagnosed with Alzheimer's until they re-diagnosed him with PSP. He has just gone into a care facility after a bad fall that resulted in a 3 week hospital stint with broken ribs & pneumonia. Just a horrible disease!
United States Reno. Nevada
Hi im from a small town called builth wells in mid wales x
droitwich worcestershire
droitwich worcestershire
I am west of Glasgow, Scotland.
Leeds, West Yorkshire.
oops only just saw this - life was busy! Right now with my dad in Leuven, Belgium - where I lived until the age of 28 - then moved to Manchester (UK) - via Stockport, Chorlton-cum-Hardy - Macclesfield (1990-2004) ... then moved to Princeton, NJ (2004-2014) - now back in Leuven until I move back to the States, probably next year.
hi droitwich spa worcestershire x
We are from Montreal, Quebec - hoping to hear about this heartwrenching disease
from Canada - my husband is the one with PSP
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