Hi my first blog in what I think will be many as I try to keep my sanity by putting fingers to keyboard and trying to let off a bit of steam. My dear Mum and our family have been on a horrific rollercoaster ride for the past couple of years. Mum's symptoms started 5 years ago and it was only this month that Addenbrooks memory clinic gave a diagnosis of psp. In the last couple of years Mum has been told she has had 5 mini strokes and then told symptoms were due to depression and anxiety, next she was refused any more help as the emotional and well-being clinic she was attending was sufficient. Next came the social workers visiting at 8.30pm one night to section Mum. The hospital diagnosed dementia with Lewy Bodies. Mum was not aloud home and was put in an awful emi unit in a nursing home. Mum was at high risk of falls to begin with and as her mobility got worse they took her off the one to one care unbeknown to us. In January this year Mum came home as usual for a couple of hours a day. One day she told us that she had been sexually abused by a resident. Mum was taken back to the home and the family were not allowed to see or speak to Mum for couple of days and then they were only able to see Mum in pairs and in a communal place. The home then blamed my stepfather saying Mum had written it was him which was not true. A safeguarding investigation began. Mum then got stressed and got chest pains and was taken to hospital in February. Mum was ok but they kept her as the family were worried about sending her back to the home. Safeguarding investigation meeting after meeting took place along side hospital discharge meetings. I wanted Mum to come and live with me but I was told I was inexperienced with my many years as a carer and as her daughter. After many battles including Mum getting a nasty chest infection, mouth ulcers and mouth thrush they finally discharged her to another emissions unit I n a nursing home. Nothing came from the investigation as nothing could be proved. However a safeguard plan was drawn up which means family can not take Mum anywhere without a care staff member coming too. We can not feed her or move her and we have to leave bedroom door open when we visit. The irony of it all. The safeguarding plan is supposed to be reviewed after one month of Mum moving in somewhere but it has now been 2 months. A meeting last week saw Mum loose her full funding as she has no longer got challenging behaviours. Social services are back in the seat and another meeting is due in a couple of weeks to discuss funding and safeguarding. I have told them that I now want both my Mum and stepfather to live with me as he has now developed a heart problem and has results back that shows he has asbestosis. I live in Essex and parents are in Stafford so commuting is getting me down. Oh and my sister has stolen all Mum's jewellery and valuables to feed her drink problem and refuses to see Mum through guilt which upsets Mum. I think there is going to be another battle to get social services to agree to let Mum come and live with me but both Mum and stepfather want to come down. Off to send a lovely big goodies parcel to Mum, keep smiling 😀
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