My Dad was diagnosed with PSP 14 months ago after 4 years of being incorrectly diagnosed with early onset dementia and depression. It first started with him losing his balance and feeling "drunk" when he was walking. This made him lose confidence in himself. I cared for him at home for two years when his eyesight started to become affected and he could not look down at his feet or to see the food on his plate so eating became difficult. At his request he moved into the most wonderful care home locally to me and I continued to visit very regularly. At this point he was still labelled with depression and dementia despite me knowing he never forgot ANYTHING! It was the lovely care home staff who recommended he eventually get a brain scan and PSP was diagnosed early last year. At last we knew dementia was NOT the problem although we were aware there was no cure. Tom (my Dad) declined fairly rapidly from then and very quickly he lost he power of his voice which was frustrating for him. Last to go was his swallowing and he laterally struggled to swallow pureed food and liquid. I have hated every second watching this cruel disease take away my strong farmer father. He is now at peace and I miss him dearly and will do so for a very long time. Tom died on Tuesday aged 74 years old.
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