Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for January 2015

Need meds to help with stiffness and freezing

Hi everyone, My father has psp now for 5 years, it is the worse disease. It breaks my heart to see him trapped in that body while his mind is fully aware of...

Hi everyone, My father has psp now for 5 years, it is the worse disease. It bre...

•9 years ago

PSP horrible thing

Hi just reading all your messages and I feel so sad George has been at the centre today fe is asleep in his armchair I feel so sad when I look at him, he has...

Hi just reading all your messages and I feel so sad George has been at the centr...

Yvonneandgeorge

•9 years ago

for all psp pls have a look

My father has been diagnosed with psp 2 years ago and has been given medicines as all patients get basically for parkinson with good results in beginning and...

My father has been diagnosed with psp 2 years ago and has been given medicines a...

•9 years ago

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Personal health budgets

Is there anyone out there with psp had who has either had an assessment for a personal health budget or had any experience of a phb? I am off to see my GP on...

Is there anyone out there with psp had who has either had an assessment for a p...

•9 years ago

Thank you

Thank you to everyone who has responded to me, it is a great comfort knowing that someone really understands my feelings and can give me some support! Will...

Thank you to everyone who has responded to me, it is a great comfort knowing tha...

•9 years ago

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symptom questions

My Husband has psp and I read to him many of the post on this site. We enjoy the questions people have about symptoms the most. Many doctors today are not...

My Husband has psp and I read to him many of the post on this site. We enjoy th...

•9 years ago

A very pleasant surprise

C hasn't dressed/undressed himself for about three months so imagine my surprise when I woke this morning to find him up, dressed and drinking a cup of tea he...

C hasn't dressed/undressed himself for about three months so imagine my surprise...

•9 years ago

travel Insurance

I am looking for travel insurance can anyone help?

I am looking for travel insurance can anyone help?

•9 years ago

Flash cards

As most of you are aware mum was diagnosed last week with PSP. obviously trying to do as much research as we can. mum can only say yes or no and sometimes the...

As most of you are aware mum was diagnosed last week with PSP. obviously trying ...

•9 years ago

PSP

We went to the hospital yesterday and they said my husband had PSP we had a feeling that he had this horrible thing, he does not want to accept it, not sure...

We went to the hospital yesterday and they said my husband had PSP we had a feel...

Yvonneandgeorge

•9 years ago

Feeling so sad.

After visiting my Sister today who has PSP she is 81 has had it for 4/5 years I cried all the way home, she looked so sad and thin and had her eyes closed...

After visiting my Sister today who has PSP she is 81 has had it for 4/5 years I...

•9 years ago

How to answer questions from others?

When I was growing up I was lucky enough to be be envied by many of my friends because I had such "cool" parents. In fact, several of my friends came to...

When I was growing up I was lucky enough to be be envied by many of my friends b...

•9 years ago

Diagnosed with PSP 6th Jan 2015

Just over 3 years ago I seen a neurologist who suspected I had MND. Recently had a Dat Scan followed by an MRI and Spect Scan as my illness wasn't following...

Just over 3 years ago I seen a neurologist who suspected I had MND. Recently had...

•9 years ago

Any one in Mumbai?

Finally my dad has passed away and we have this bed specially made for him. If anyone thinks it might be useful for them pls message me and you can arrange to...

Finally my dad has passed away and we have this bed specially made for him. If a...

•9 years ago

2nd Continuing Care Assessment

The Continuing Care Assessment people are coming to see my father, his care home staff and me for their stage 2 assessment visit on 30th January. Their first...

The Continuing Care Assessment people are coming to see my father, his care home...

•9 years ago

Sunset In Lyme Regis

Yesterday I took my wife down to Lyme Regis which is small fishing town and holiday resort on the Dorset coast. It's only 40 minutes away from us and we...

Yesterday I took my wife down to Lyme Regis which is small fishing town and h...

•9 years ago

Night noises

Has anyone noticed there loved ones shout or make strange noises at night. It has been going on for a while but it seems to have got worse over the last couple...

Has anyone noticed there loved ones shout or make strange noises at night. It ha...

•9 years ago

pain in hands

my husband gets pain in his hands, especially at night. He is not cold. Any ideas of helping ? I give him paracetemal and Ibuprofen gel. Jean

my husband gets pain in his hands, especially at night. He is not cold. Any idea...

•9 years ago

Mum diagnosed with PSP yesterday

So my mum who is 83 was diagnosed by the Nuerologist yesterday with PSP. Mum was admitted 5 weeks ago to hospital with a chest infection which turned out to...

So my mum who is 83 was diagnosed by the Nuerologist yesterday with PSP. Mum wa...

•9 years ago

What is "normal"...?

I keep wondering what is normal. I've been in this weeping thing- that out of the blue I'll be walking along in a store shopping and suddenly get hit with a...

I keep wondering what is normal. I've been in this weeping thing- that out of t...

•9 years ago

Nasal speech is caused by ..

after a couple of years I figured out why voice is nasal and why my head gets stuffy at times and then iis ok at times over and over during each day. It is...

after a couple of years I figured out why voice is nasal and why my head gets st...

•9 years ago

Friends Withdrawing

Well after 8 years of PSP I've begun to notice my growing isolation. This is a hard one. The holidays were horrible. We really couldn't attend any parties and...

Well after 8 years of PSP I've begun to notice my growing isolation. This is a h...

•9 years ago

Hospices

Hi All, There seems to be the incorrect assumption about Hospices by some people. I'm not an authority on them, just a convert! S only started going to our...

Hi All, There seems to be the incorrect assumption about Hospices by some people...

•9 years ago

After watching a couple of commercials regarding cancer care centers (and I am not taking anything away from those awesome centers) I...

... began thinking why can't there be similar centers for PSP (and other related illnesses) patients. Is there even such a thing? Home care, palliative care...

... began thinking why can't there be similar centers for PSP (and other related...

•9 years ago

Stopped in my tracks

As I was getting my wife dressed this morning she suddenly asked "what's my son's name ?" I said "it's Joel of course " and she just looked blankly at me...

As I was getting my wife dressed this morning she suddenly asked "what's my so...

•9 years ago

Something not quite rite

This is what I found after 2 trained carer's had put Brian to bed last night.

This is what I found after 2 trained carer's had put Brian to bed last night.

•9 years ago

New to all this

Hi , I am new to this site, my mum has recently been diagnosed with psp after a 4 year wait, I promised my mum years ago that she would never have to go into a...

Hi , I am new to this site, my mum has recently been diagnosed with psp after a ...

•9 years ago

Low blood pressure

I went to visit my mum earlier today to find that she has been moved again to a different ward. She has also had a nasty fall resulting in stitches below and...

I went to visit my mum earlier today to find that she has been moved again to a ...

Julieanne25arobinson

•9 years ago

Now at peace

Eddie did not make it through the day,my love died at 3pm now at peace and released from this most devastating illness. I will miss him as he was my life...

Eddie did not make it through the day,my love died at 3pm now at peace and rele...

•9 years ago

Anyone had a Videofluroscopy?

My husband was referred to the hospital in November as staff at the hospice want him to have a PEG fitted. The specialist we saw said he wouldn't do it...

My husband was referred to the hospital in November as staff at the hospice want...

•9 years ago

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