My husband was referred to the hospital in November as staff at the hospice want him to have a PEG fitted. The specialist we saw said he wouldn't do it because of the risk involved and because my husband, "Certainly doesn't look malnourished". He has now been given an appointment for a video X-ray of his swallow. It says he will be given a drink of barium, some yoghurt and a barium sandwich. It also says, " If there are certain things you know to be difficult, please bring these with you". If I do that I will have a big bag with me.
We have a list of instructions which must be followed and I'm not sure my husband will be able to follow them ie. holding the food in his mouth until the doctor says 1,2,3 swallow. For the sandwich, chew it as long as you need to and when you are ready wave to the doctor. He will then count to 3 and say swallow.
Has anyone else had to do this and how did they get on. I can't see my husband following any of these instructions.