When I was growing up I was lucky enough to be be envied by many of my friends because I had such "cool" parents. In fact, several of my friends came to live/stay with us at various intervals because they had fallen out with their parents and mine were always there to lend an ear.
What I'm finding hard at the moment is that my lovely friends and people that my Mum and Dad helped as youngsters over the years (and believe me there were many) are all incredibly upset about Mum having PSP and want/need regular updates on "how she's doing?"
What do you say?
Dad and I have talked about this and about how it now feels necessary to be absolutely honest with people but god it's hard.
My Mum's god-daughters want regular updates as do many of my friends and I'm really struggling to know what to say to them. It seems that so many of my conversations are now about Mum's illness and as much as I try and talk about something else, these people also need to "talk" about it and tell me how sad they are and how important Mum has been to them. I love and appreciate that but I don't know how long I can keep talking about it all.
I've tried the "sadly she won't get any better" in response to "hows your Mum doing, better I hope?"
I've tried "she's not doing so well I'm afraid, that's the nature of the disease" and as for when people tell me how "well she looks"......I have no answers, they have no idea.
I was thinking of sending an email round to those who keep asking (out of love I hasten to add) just saying that I'm finding it really difficult talking about Mum and that if there is anything of significance to report I will let them know but that I find it too upsetting to constantly talk about it.
What do you think???
Your wise words would be greatly appreciated