Hi , I am new to this site, my mum has recently been diagnosed with psp after a 4 year wait, I promised my mum years ago that she would never have to go into a home and I still stick to that promise no matter how hard this gets, its not because I think badly of them but just because it's her decision and I want to honour that.
I have given up full time work as I have fibromyalgia and would not be able to look after mum working full time. I have been reading some of your posts and want to thank you all for sharing something so personal in order to help others. We have a physio and a speech therapist come once a month but other than that we are alone.i go to mums every morning as I have a car and my sister and 5 of our children take it in turns to go every afternoon, it is adequate at the moment but I am afraid of what the future holds.
Mum was on sinemet and resaguline until recently as they seemed to make her worse and I wondered how the rest of you manage with meds