Hi all, We had our four month visit to our neurologist at Shands Hospital Neurological Clinic this past week. We go there for an evaluation of Sharyn's PSP condition. No swallow test this time but our next visit in August they will do one.
We did participate in a study while there allthough it was not planned in advance. They placed Sharyn's hands/arms in a device that also separated her fingers. They they played, on the computer, a series of click sounds. At first they started slow then gradually increased in speed. Sharyn was to tap her index finger in time to the sounds. If you know anything about PSP you know that coordination of this tapping was not too consistant. They did this about four times, the test. They are studying movment and response in PD and PSP patients.
We return to Shands in July for our anual participation in another study which involves a very, very, lengthy MRI and some coordination movements during the MRI. We are glad to help in any study if it will help someone down the road with PSP.
Bottom line on Sharyn is that she has not progressed very much in PSP according to the top neurologist. Neck a bit more stiff and eye movements a bit advanced but really no significant changes since four months ago. Thank God! Slow advancement is a real blessing.