My mum has had PSP for 7-8 years. We were told by neurologist last October that mum is now in the final stages. Mum can no longer walk, her speech some days so bad she is almost impossible to understand, all food liquidized and drinks thickened to a custard consistency. So far no chest infections. A week ago we had to call doctor out as mum was very feverish, headache and felt sick, she was sweating so bad but didn't have high temp, the doctor ruled out chest infection but queried possible UTI. Next day she felt much better. Tuesday night when my husband went to visit her at care home, again if found her with high fever but also bad chest pains, ambulance was called. She was treated as having suspected heart attack as first blood test showed higher levels than normal, the test was to be repeated in 6 hours. The second test showed the same levels so heart attack was ruled out. The doctor thinks mum has experienced an esophagus spasm. This was quite unexpected as I can't find hardly any info with this and PSP? It was never mentioned by neurologist last October when I spoke to him privately to ask what should I expect in mums final stages, he talked about the body becoming more rigid etc but nothing about spasms at all. I know some PSP sufferers do have various body parts that spasm or some full body spasms.....but internally? I'm really concerned about this new symptom, can anyone spread any light on this matter for me?
Thank you and wish you all well.