NMH is Neurally Mediated Hypotension. I had done a lot of research about it to prepare for my next Neuro appt. (tomorrow) and can't find it anywhere. What prompted me to do the research is the near-faint event while driving to the hospital for my swallow test, which prompted the end of my driving days.
I've been a chronic fainter since age 3 to the present. The 1st time at age 3, my Mom had me in a highchair to take a sliver out of my finger. I watched her hold a needle to the end of a match and told her "My eyes are getting small.". (Yes, I'm mostly blessed but sometimes bothered by an accute memory going back to when I was in a crib.)
I fainted often and everywhere. Anytime I had to have a shot. If I saw blood. If I was startled suddenly. If I stood too long in a line. Especially during Mass; had to kneel for so long, then would stand to go to communion, and pass out in a blink.
I've hurt myself numerous times due to the falls I've taken over the decades, including several serious knocks on my head. It has interferred with my life greatly; after an episode, even if I don't lose consciousness, I feel very ill the rest of the day.
I've asked almost every doctor I've seen over the years about it, because it was that big of a problem for me. It was always dismissed with a "don't worry about it; you won't die from fainting, but you might get hurt from the fall". Very frustrating.
When I was 40 during 1998, I had to jump out of bed suddenly because one of my girl's was sick. I passed out cold in the hallway. I thought enough is enough. I need to know what this is.
I saw a cardiologist who had me undergo a 'tilt table test'. I had to lie on a flat table, with the lights low, for 30 minutes. I was strapped onto it from head to toe. At 30 minutes, they raised the table to a 60 degree angle. I felt like a dope. Told myself it was another wild goose chase. Then the fainting sensation hit and out I went.
The Doc told me I was out in under 2 minutes, the 2nd fastest time they ever tested. This was significant because it meant I had little warning of what was about to happen & take precautionary actions. My heart also stopped for 6 seconds. They didn't have to shock me, but had to give me an injection of something to restart my heart. I had to stay in the hospital because my pulse and BP did not bounce back like it should; both my BP & pulse stay very low, which explains why I feel so sick afterwards.
He put me on both a beta blocker & anti depressant to manage it. It left me so medically intoxicated I called them and told them I couldn't tolerate the meds, I knew what my triggers were and would manage it myself. Which worked basically fine for a good while. If I got the sensation of fainting, I'd lay down anywhere I was including parking lots, the floor of stores, etc.
However, about 3 years ago these fainting events no longer followed my usual triggers. They've come on faster and more randomly. I saw a cardiologist at that time because it concerned me greatly. I asked for a repeat of a tilt table. She gave me a list of postural excercises to do, which didn't help.
I easily have 3 or 4 of these events a week; sometimes more. One event even occurred during my sleep; I was dreaming & was startled by something in the dream & woke-up fainting lying in bed. Kept telling myself to call 911 but didn't; didn't want to scare the kids, etc. After 30 minutes of laying there, I started feeling a little better but got hit by a second round.
So there you go. With it comes the added bonus of low blood pressure. I'm 54 and my runs around 90/60, or lower, or if really worked up at a doctor's office, 125/70-something. I always tell them "this is the big one coming"; they ignore me My pulse hobbles along between 60-70. I know many people my age or younger would like to have these numbers. But it's icky. I've always felt like I've had to work 3 times harder at anything because my wiring doesn't allow for the needed boost.
So after that event of almost passing out behind the wheel in which I maybe had 30 seconds from the onset, scared out of my witts, deciding (with lots of encouragment) not to drive anymore, I started digging.
I know I found somewhere on the blessed internet, a connection between PSP & NMH which is now being treated with a pacemaker if medication doesn't help. Really don't want to do the beta-blocker thing again; I felt trapped in my own body; I don't need that.
If anyone knows anything about this connection, or sounds familiar to anyone, I sure would appreciate your input. I certainly will talk to my Neurologist about this tomorrow. The NMH has been a burden all of my life. I'm not saying I've had PSP all of my life. But it was interesting to find the info out there.
Thanks in advance for your patience and any feedback you might have.