Hot flashes?

[Nursewendy3761]

Anyone have hot flushing- it is 100 times worse than hot flashes? Does it come with flares?

[Hidden]

I'm new to this nursewendy so not sure but I can tell you I get this too.  It wells up and I go as red as a beetroot.  Not just face but complete body.  It Makes me feel weak too.  I'll be very interested to see what answers you receive. 'M'

[Cjmsm331 in reply to Hidden]

I am 36 yr old woman and I have been getting hot flashes all day and all night for about a year.

[Hughes-Comrade]

Take a close look at any meds that you take. Cymbalta would make me sweat buckets of water…. Fentanyl patches, high dose 100mcg, would give me really bad hot flashes and cause me to sweat. Just a thought. I think some supplements can cause issues too. 

[Foss]

Oh yes, and it's so good to read everyone's posts.  This started with me two weeks ago and I didn't know what had hit me.  I'm past the menopause, but have continued to have hot flushes, but this surpassed anything I've experienced.  The first time I was driving and became drenched in sweat and felt very nauseous.  My clothes were drenched.  This has continued to a lesser degree ever since.

I do take Cymbalta and had increased from 60mg to 90 some weeks back without feeling any improvement in mood or pain.  Couldn't see my G.P. So have reduced it back to 60 again with some improvement.  I'm waiting for an appointment.

Do you think this is Hughes related?  I have mild APS whatever that means.

Foss.

[Hidden in reply to Foss]

question, why do you take cymbalta? Is it due to body aches ?

[Lure2]

Hi there, I wonder if you have got APS? Who is  treating you and where do you live?

Kerstin

[Foss in reply to Lure2]

Hello Lure2. I was diagnosed with APS by Prof de Cruz at Lupus Clinic London and put on daily aspirin.  I've not had any clots thank heaven.  

Foss

[Lure2 in reply to Foss]

Hi Foss,

I meant to ask Nursewendy3761 about this as this is her question and you aswered instead.  Now I understand why I continued to look at your person and saw you had other illnesses. At least now I understand what I did and why I did it. 

Kerstin

[Foss in reply to Lure2]

Sorry Lure 2 if I confused the issue ! 

Foss

[Lure2 in reply to Foss]

Hi, It is quite OK! I also get confused from time to time. We are in the same boat with this illness.

Kerstin

[Nursewendy3761 in reply to Lure2]

Sorry- as far as I know I have Primary APS. I live in Kansas. I am on Cymbalta, which I will look into side effects of. But the heating up didn't start til I got sick in Nov. 2015 and I have been on Cymbalta for years. Also on Plaquenil, Warfarin, Aspirin, Sulfasalazine, and prednisone. I also flush red and at its worst, my face gets the hottest and is very painful to touch.

[Nursewendy3761 in reply to Nursewendy3761]

I am being treated by a rheumatologist.

[Juejue11 in reply to Nursewendy3761]

Where in Kansas are you from? I live in Wichita, I had a rhumey but my insurance changed and I wasn't able to see him for a while. I am hoping now I have something more stable that I can get him back. It sounds like I am trying to woo back an ex. Wondering if you would like to swap war stories. I am originally from UK and been in Ks almost 20 years

[Nursewendy3761 in reply to Juejue11]

I’m in Wichita! I’d love to swap stories!

[Juejue11 in reply to Nursewendy3761]

Email me. My email is my username at cox.net. I am sure you are familiar with cox if you are in Wichita lol

[Lure2]

I understand you also have SLE, Sjögrens, Raynalds plus APS. Have you checked the D-vit, Ferritin, Thyroidea (all of them) B-12. Mary often talks of them.

Cheque your drugs. I have never sweated from APS but been cold instead. I have primary APS though.

Kerstin

[MaryF Administrator]

I do, but never sure where one ailment begins and another ends, sometimes flares, sometimes my hormones....  MaryF

[Lure2]

Primary APS means that you have no other autoimmun illness so far diagnosed. I have PAPS but you have told us you also have Sjögrens and ev others (?).

Kerstin

[Nursewendy3761]

Yes- as far as I know it's primary.

[Lure2]

I am so sorry. I thought of Debbweb01.

think it is the second time I do this mistake. You and she have the same face in blue and it starts with D and the same numbers of characters .I write a lot on this site and sometimes it happens like this. 

Can you forgive me please?

Kerstin

[Debbweb01 in reply to Lure2]

It's ok cuz I also have polycythemia lol...

[Hidden]

Yes....I am well past Menopause  and when I have a flare-up or just feel "under the weather; and//or suffering from a cold/sinus infection etc.....my cheeks flush..bright redding color....and feel warm to the touch....and I do not have the skin coloring that flushes...ie blushing or flushing when having a few glasses of wine (I don't drink alcoholic beverages...just using as an example)....

seeing my Rheumatologist in 2 weeks for my 90 day visit...plan to ask her...perhaps it has something to do with our "immune system" going on "high alert" ...

[Hidden]

just remembered....if I get overheated...I begin to sweat and my face flushes....have to be careful in the summer...no excessive work outs in a hot location..finding myself in .heat and humidity with no available AC is my idea of   nightmare

[littlesinger1]

My hot flushing is a lot worse after being diagnosed with aps, what I found helpful is a cooling spay from the pound shop,also I take flaxseed twice a day which has made a big difference.

[Salmonious]

I get sweats at the strangest times. I can wake up soaking wet or the sweat starts to drip down my face when I am simply watching TV. I have seen a cardiologist who said it is not from my heart. However I don't turn red I just get very hot and sweat, it can last up to half an hour. I am way past menopause.

[Salmonious]

Oops sorry!

[Lure2 in reply to Salmonious]

Hi Salmonious,

Look at what Mary says about thyroid blood-tests!

I also hope you drink enough as to the sweating. Good Luck!

Kerstin

[diww1]

Hi I have really dreadful hot flushes with severe sweating between 48 and 96 every 24 hours .. I am definitely post meanapause and didn't have one hot flush during menopause.

My hot flushes are so severe and have changed my quality of life totally

They started on 1 Dec 2017 .. never had one before that .. woke up that day and had 96. I have 2 to 4 every hour day and night

Been two years trying to find why

I have APS and other illnesses .. still searching for the cause

Hope you find answers I truly empathize x

[HollyHeski Administrator in reply to diww1]

Hi, this is a very old thread, can I suggest you start a new post to get some answers?

Also it may be worth getting your thyroid checked?

[diww1 in reply to HollyHeski]

Yes sorry just noticed it was an old post .. I've had thyroid checked many times even for auto immune thyroid

[diww1]

Yes sorry just noticed it was an old post .. I've had thyroid checked many times even for auto immune thyroid