Why is my body sore to touch - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Why is my body sore to touch

kezebabe profile image
5 Replies

Ok so it feels like flu but I haven'tg or flu , and my skin is so sore and if I touch anything cold it kills its like a icy pain and its makingm e feel so rough anyone know what I'm talking about thanks

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kezebabe profile image
kezebabe
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5 Replies
GinaD profile image
GinaD

I couldn't find an imogi for a shoulder shrug. But sorry, I have no idea. I do hope you figure this out. Do see a doctor.

Gina

Jolevans profile image
Jolevans

Hi, I get this a lot usually when my INR levels drop. Do you self test as I find this helps in keeping my levels finely tuned.

Hope this helps.

5thCVAguy profile image
5thCVAguy

When I was on warfarin and when my levels yo-yo really bad everything hurt. Touch made it much worse. Stay strong

CaliforniaGail profile image
CaliforniaGail

Achey like flu feeling and skin sore to touch... perhaps on the arm or whatever spot feels sore -- Sore joints, achiness from APS or UCTD (I have both) can be helped with Plaquenil if that's a possible reason for your achey pain. As for the icy pain -- could be connected to a Raynaud's condition, which is also something that hits a lot of us APS sufferers. My finger tips can "flare" just walking down the freezer aisle at the supermarket. Sometimes my fingertips are painfully sensitive and hurt just brushing up against something. Thankfully, my flares aren't frequent -- and I religiously wear gloves since cold will trigger them.

MaryF profile image
MaryFAdministrator

I hope you have an appointment coming up so they can test you for your levels, plus Vitamin B12 iron, and vitamin D also. MaryF

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