Hi , thought I would just note down for others a little 'episode' that is ongoing at the moment as it has struck me like running into a wall how my blood state allows me to feel.
Have had a few too many weeks feeling a bit 'off' in last couple of months... the usual 'is it just me' type stuff.. lethargic, stiff legs, and memory like a sieve.. and then last week or 2 I have felt a bit 'normal'.. well until the other night anyway.
Something stupid happened, I swallowed a crown that popped out whilst eating the other night, why worry I hear you say?.. Well it has this sharp metal spiked post sticking out of it and I was 4 weeks after last INR so I called 111 who said go to A & E who sort of weren't sure what to do with me but luckily yet again got ace treatment, BP monitored and X-rayed and it was sat there, en route in the small bowel. They also did an INR at 8.00pm that night, about the time I would take Warfarin normally and it was 3.2 so they decided I should leave it that day. My target is 2.5.
Anyhoo all night in A & E after transferred to bigger hospital and next day get another X-ray and Bloods done again around 10.00am with BP being monitored every couple of hours it shows it had moved on to the large bowel so was beyond... . easy location.. and they decided to discharge me and let nature run its course...
But before I left I pushed for my INR result from the morning test.. it was 2.2 which surprised.. no shocked me I suppose as to how quick it dropped so far.. Now I am feeling rubbish and not sure if it was the sleep deprivation of A & E or count.. Get nurse to ask what I should do and we speak to anticoagulant doc who says just resume dose that night
Anyway on way back home I make appointment with GP Surgery to try and get INR checked in next couple of days and they fit me in the day after (44 odd hrs after missing dose) and it has dropped again to 1.9! and I have appointment to review next week.
Now I finished the jibber jabber a couple of things really jump out.. This is for the 'Newbies' like me I suppose as we are all learning/coping/adjusting still
I feel rubbish.. tired.. really have to delve deep in my head with pauses to find the words that work for me whilst typing this.. it feels like someone has turned that imaginary tap on in my legs that make them feel like they are heavy, full up with blood.. Coincidence?... I think not!
How quick was the INR drop!
DO NOT miss your dose slot, be regular as clockwork as it might throw you right off like it has me. Lets hope it stabilises quickly.
I used to yearn for my count to be stable enough that the weeklies become a month or 6 weeks gaps, Now I want to know what it is every time I feel grotty. I will save for my own machine somehow and even if they won't sanction it I want to monitor my INR.
If it goes off track I try not to worry about it, as long as it's not too far of course, it happens, just now I know I need to get it back on as soon as possible and I won't be phased if its a little high, it seems higher may suit me a little.
Is anyone doing any trials for 'Wellness' based on INR cos if they are where can I sign up!.. Lets hope this is on the agenda when I go back up to St Thomas.
That's was all really to show how quick INR's can go 'off'...
Oh for anyone remotely interested.... It's still.. en route...... I think anyway 95% sure .. hoping it's not facing the wrong way!