Is the GP computer dosing accurate? - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,443 members10,641 posts

Is the GP computer dosing accurate?

Lani profile image
Lani
4 Replies

I used to self manage before getting pregnant but since I've had my baby I've been getting my inr checked at my gp as it has been a bit up and down. They use a computer to dose me but I don't have much faith in it and often end up dosing myself anyway. For example today my inr was 1.8 but it has said to stay on the same dose until next Wednesday and then up it one mg then test again Thursday. This seems inaccurate to me as I would have increased my dose tonight as my inr will now be low until at least next week? The nurses doing the dosing don't seem to know anything about it so wondered what research has actually gone into this dosing system and if anyone else has problems? Thanks.

Written by
Lani profile image
Lani
To view profiles and participate in discussions please or .
4 Replies
AvsG profile image
AvsG

If you were self managing before why not carry on? You seem to have more knowledge than your GP. I feel much safer self testing and being in control. I have the support of a Consultant at the Hospital who understands Hughes Syndrome. Is there anyone at your Hospital or Warfarin Clinic that could support you?

Anon75 profile image
Anon75

Dosing software is fairly routine in GP practice's these days and many are created by Drs for Drs. INRStar, Dawn, Etc are the more common decision support software programs. The clue is in the title though, they're for support. If you've self managed your own dosing successfully and have achieved good time in therapy range, why not carry on with GP support?

Anon75 profile image
Anon75

Warfarin actually takes up to 5 days to reach therapeutic effect, which is why INR tests are repeated in weekly blocks until stable* Warfarin management is likened to steering a large ship, you have to think far ahead.

Lani profile image
Lani

Sorry I only just read these replies. This is now my only anti coagulation clinic as used to be at the hospital but the haematologist that did it left and they cancelled the service. It's now only done through the gp clinic. I mentioned my concerns to the nurses and they just sort of said' oh 'and that was that. One of them mentioned to my doctor before that I was sometimes dosing myself and all he said was let her do what she wants she knows more than us! So basically I feel completely alone with it all. I used to self manage with my haematologist but I don't even have one now. I'm just glad I have the sense to know its wrong.

Not what you're looking for?

You may also like...

Conflicting GP advice

I had a few clots 20+years ago , was diagnosed as having APS on warfarin for 5+ years. Then...
Lucky67 profile image

Warfarin INR - too high but infrequent monitoring

Hi Folk, I'm just getting a little concerned that my local Anticoagulation Clinic is understaffed,...

Incorrect INR Data being recorded by GP Surgery

I recently discovered that the INR readings that I am sending to the Head Nurse at my GP Surgery...
SteveRN profile image

How I know that my blood is thick!

Went & had my INR checked at my surgery 2 weeks ago & it has only been 2.3, the nurse said the...
Suzypawz profile image

Headaches while asleep

Hi All Does anyone else get headaches just when they are asleep? You may ask how do I know if I...
Elaine77c profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.