I have had it triple confirmed that I have APS with some other autoimmune condition (I believe SLE, and it fits). Spoke with my thrombotologist two weeks ago and enquired about self-testing. She said she would investigate for me and it could be a possibility if we ran a trial dual testing period. I am going away for the best part of a month to a remote part of the country where a visit to an anticoag clinic will take a whole day, and as the only driver will ruin the holiday for my family. Ideally I want to get on my own machine whilst away so I can self-manage (fluctuating INR as a result of alterations to new medications mean at least a weekly test, and camping diet is different to home diet so is likely to have an effect).
Please can someone tell me how to get this organised? Unfortunately my thrombo is on leave for 2 weeks. I know I need to ask my GP to prescribe the strips, and I don't anticipate this being a problem.
Holiday or no, with 4 children and feeling rotten as I often do, the thought of weekly trips to the hospital for the rest of my life is daunting and depressing me.