What is the right range of INR for Hughes

[PGNYC]

I have been reading on here that so,e doctors recommend an INR between 3-3.5. Where can I get info to show my doctor.

[MaryF Administrator]

Hi there, a useful page lifted off our charity web site for you: hughes-syndrome.org/self-he...

MaryF

[Suzypawz]

Many are all an individual range decided by your go, but prof Hughes likes us between 3-3.5....,mine is between 2.8-3.5, I struggled to get them to higher mine as Docs get worried with high inrs & possible bleeds.....I got my doc to ring London hos to ask for advice on range & that helped me....

[jetjetjet in reply to Suzypawz]

Hi my Hero -- Hows my Suz ??????????????????????????????

[Jomack]

Morning... My INR is set between 3.5-4.0. I have to have it thinner because I had a stroke at 2.9! So I clot quickly! :0)

[monsoon17]

Mine is set up to 3. St Ts do not want me higher as I may have some bleeding somewhere. Every patient is different and articles can only really give guidelines. Good luck with your quest.

[jetjetjet]

Hi PG - Jet here in N.H. - my range is 2.5 to 3.5 BUT - i feel better at the 3.5 end --- we are all different and it's where you feel good { in my opinion } I have and have always had a problem with my INR -- I can be a 2.4 on Monday and a 9.1 on Thursday. I think some of the Material Mary F had directed me to may have hit it . I am very hyper and always have been -- I take 27 pills a day -- 4 narcotics.--- That might very be my erratic INR troubles--- I also have 25 Dia. problems . I have been battling this since September 1 st of 2009. clots in both lungs [R] a cluster of clots -- [L ] an 1 inch thick clot across the bottom of that lung --also large clot in left groin and large clot behind left knee-one in left side of neck and one under left arm pit ---- so i was loaded.I do well now off and on . that is my range and i would like it to be higher maybe 4 or higher. i also have AVN and osteo arthritis in feet - knee's-- back shoulders and neck.-- here for you if you need------------------------------- Casey and I