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Hughes Syndrome APS Forum

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Chromogenic Factor X Blood Test

Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your...

Does anyone use this blood test, instead of or in conjunction with a Protime, to...

mburns1401

•1 day ago

2 Replies

Aps ireland

Are there many people from Ireland here who have aps and could the tell a part of théir story

Are there many people from Ireland here who have aps and could the tell a part o...

ste1000

•2 days ago

2 Replies

APS and periods

Hi everyone, To clarify, I’m a man, but writing as genuinely interested in hearing views and experiences of women with APS and what, if any, impact it had /...

Hi everyone, To clarify, I’m a man, but writing as genuinely interested in hear...

sailorbaejon

•4 days ago

2 Replies

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APS gathering in Michigan

I have received word that in mid October they are hosting a symposium on APS. Their latest research for all interested. A chance to meet others and hear the...

I have received word that in mid October they are hosting a symposium on APS. Th...

BeachHaven123

•5 days ago

2 Replies

Blood draw

Last Friday I went to have blood drawn at The GP practice with the Health care assistant (my annual stroke reveiw ) She tried 3 times on each arm and couldn't...

Last Friday I went to have blood drawn at The GP practice with the Health care a...

mully

•5 days ago

8 Replies

Inherited APS ?

Hi everyone, I hope you are having the best day you can! I have APS, being Lupus Anticoagulant Positive. As some of you will remember, the day we moved back...

Hi everyone, I hope you are having the best day you can! I have APS, being Lupu...

WendyWoo50

•7 days ago

22 Replies

Need help

My name is Erykah I have lived with Lupus and APS for a long time. I also have several neuropathies. I have occasionally had a weird symptom when I pass...

My name is Erykah I have lived with Lupus and APS for a long time. I also have s...

Erykah

•12 days ago

5 Replies

Pain under left breast

Hi all thanks so much for the replys it's great to hear of other people's problems too at least I know it's not just me 😅thank god its gone today ,last night...

Hi all thanks so much for the replys it's great to hear of other people's proble...

Hotelfanatic

•15 days ago

1 Reply

Stabbing pain.APS positive

Hi all I just wanted to know do any of you suffer with very bad trapped wind and get like a real bad stabbing pain under your left breast,I have stomach issues...

Hi all I just wanted to know do any of you suffer with very bad trapped wind and...

Hotelfanatic

•16 days ago

12 Replies

Help! Morning nausea and diarrhea.

Every morning I suffer a four hour bout of diarrhea, nausea and stomach pain. Diagnosed APS, am on Apixaban and Clopidigrel (unstable INR from warfarin). Does...

Every morning I suffer a four hour bout of diarrhea, nausea and stomach pain. Di...

Advocate2286

•18 days ago

12 Replies

Looking for APS specialist in Colorado who takes insurance

Hi everyone. New to this and I understand that Jill Schofield is one of the top experts in the US but she no longer accepts insurance and my family cannot...

Hi everyone. New to this and I understand that Jill Schofield is one of the top ...

queen-adjacent

•23 days ago

8 Replies

Is warfarin not the med for aps anymore...if not what other anticoagulants do they give?

Professor d Cruz said 20 years they would put you on warfarin but not now. So he recommended seeing a hematologist with a interest in aps. Just curious what...

Professor d Cruz said 20 years they would put you on warfarin but not now. So he...

Charts

•24 days ago

18 Replies

working with aps

how do you deal with working with this?

Bbbhgd

•28 days ago

1 Reply

complicated question

this is a really complicated situation and wanting all of your advice of what you would do. I’ve had aps probably all my life and wondered what is wrong with...

this is a really complicated situation and wanting all of your advice of what yo...

Bbbhgd

•28 days ago

7 Replies

Dizziness- Unsteady

I have been diagnosed with APS only a year ago, but I have had dizziness for many, many years. Been to many doctors, MRI's, etc., but no reason could be found...

I have been diagnosed with APS only a year ago, but I have had dizziness for man...

blondebeauty

•1 month ago

13 Replies

purple blotches on skin

good morning. Can anyone explain how micro-clotting is diagnosed please. Thank you.

good morning. Can anyone explain how micro-clotting is diagnosed please. Thank ...

Zamalek

•1 month ago

3 Replies

Falls

So I fell over 10 days ago ( really good start to the day falling as you get on a tube train). Fortunately no major damage - although lots of multi coloured...

So I fell over 10 days ago ( really good start to the day falling as you get on ...

GillyA

•1 month ago

5 Replies

I'm new and lost. Looking for tips

I have APS and AIP (Porphyria) and I'm on a good handful of meds for medical and mental health things. Has ANYONE heard of someone dancing with both of these...

I have APS and AIP (Porphyria) and I'm on a good handful of meds for medical and...

Jmkeefe

•1 month ago

20 Replies

Von Hippel Lindau Syndrome

Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large (2 inch in diameter) tumor in my kidney. Pathology showed that I have/had...

Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large...

myarabella

•1 month ago

4 Replies

So overwhelmed. APS and AIP

Has anyone ever had ANY experience with living with both of these at the same time? I swear, "if it weren't for bad luck, I'd have no luck at...

Has anyone ever had ANY experience with living with both of these at the same ti...

Jmkeefe

•1 month ago

5 Replies

hysterectomy

Hi, has anyone had a hysterectomy, and how was it? I am on both warfarin and clopidogrel. Kind regards Anja

Hi, has anyone had a hysterectomy, and how was it? I am on both warfarin and cl...

Anjdur

•1 month ago

15 Replies

latest research on stevia

I just received several posts that the latest research from Cleveland Clinic and Thrombosis Journal suggests artificial sweeteners ie Stevia causes blot clots....

I just received several posts that the latest research from Cleveland Clinic and...

BeachHaven123

•1 month ago

7 Replies

Balance Issues

I know reading up on the symptoms of APS that problems with balance seem to be an issue. Can anyone who experienced it share how they felt. Mine came on...

I know reading up on the symptoms of APS that problems with balance seem to be a...

Sparklingsunshine

•1 month ago

22 Replies

Just Asking For Advice/ Opinions.

I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed...

I'm in the process of possibly being investigated for APS. MyGP is seeking advic...

Sparklingsunshine

•2 months ago

18 Replies

Urgent! Cataract surgery info.

I was booked to have cataract surgery this coming Monday and the hospital contacted the surgeon and said because of APS I have to have single use instruments...

I was booked to have cataract surgery this coming Monday and the hospital contac...

Ozchick

•2 months ago

13 Replies

Is there a link between hemangiomas and Hughes Syndrome.

Hi, I have many autoimmune diseases as well as triple positive APs. Spinal scans have shown five hemangiomas on my spine. Another appeared on my trunk when...

Hi, I have many autoimmune diseases as well as triple positive APs. Spinal sca...

Jillymo

•2 months ago

13 Replies

Debbie

Recently come out of hospital after 3 months following an unexpected bowel operation (fortunately not cancer related)Just wanted to big up the NHS. The...

Recently come out of hospital after 3 months following an unexpected bowel opera...

Womanfriday

•2 months ago

7 Replies

Triple Positive, High Titres, no event yet. Prevention?

Hi all - On the one hand, I feel very fortunate to know that I have the APL antibodies (just tested as persistent at 12 weeks) before anything dire has...

Hi all - On the one hand, I feel very fortunate to know that I have the APL ant...

queen-adjacent

•2 months ago

14 Replies

Having a bad day

This is my third post in this group and I’m hoping to get some positive testimonials from long term APS patients. I’m 38, my partial diagnosis started a month...

This is my third post in this group and I’m hoping to get some positive testimon...

Vmarti

•2 months ago

21 Replies

Eliquis

This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me...

This may be a little long. On June 9, I went to the ER with shortness of breath,...

Vmarti

•2 months ago

11 Replies

Write a post or ask a question

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

Chromogenic Factor X Blood Test

Aps ireland

APS and periods

APS gathering in Michigan

Blood draw

Inherited APS ?

Need help

Pain under left breast

Stabbing pain.APS positive

Help! Morning nausea and diarrhea.

Looking for APS specialist in Colorado who takes insurance

Is warfarin not the med for aps anymore...if not what other anticoagulants do they give?

working with aps

complicated question

Dizziness- Unsteady

purple blotches on skin

Falls

I'm new and lost. Looking for tips

Von Hippel Lindau Syndrome

So overwhelmed. APS and AIP

hysterectomy

latest research on stevia

Balance Issues

Just Asking For Advice/ Opinions.

Urgent! Cataract surgery info.

Is there a link between hemangiomas and Hughes Syndrome.

Debbie

Triple Positive, High Titres, no event yet. Prevention?

Having a bad day

Eliquis

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