hysterectomy: Hi, has anyone had a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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hysterectomy

Anjdur profile image
13 Replies

Hi, has anyone had a hysterectomy, and how was it?

I am on both warfarin and clopidogrel.

Kind regards Anja

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Anjdur
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13 Replies
Mermaidatheart profile image
Mermaidatheart

Yes, I have. It was just fine! Just had to go off of warfarin, INR had go down to about 1 or so, bridge with jabs. After the surgery my PCP helped me go back to correct level, after I used all my jabs, with warfarin.

Anjdur profile image
Anjdur in reply to Mermaidatheart

Thank you, that was what I needed to hear 😊

Mermaidatheart profile image
Mermaidatheart in reply to Anjdur

Glad I could be helpful in some way! Of course, this was only my experience m, hopefully your experience is a good one also!

Star13 profile image
Star13

I have and it was the best thing I ever did! No issues and fully recovered after 6 weeks. Don’t worry just make sure you have a good anticoagulation plan and stay positive.

Anjdur profile image
Anjdur

Thank you so much 😊 This will be my first surgery after my diagnosis and I am a bit afraid of coming off warfarin and clopidogrel. It took months in the beginning to get my inr in range 🫣I will try to think positive, and I do trust my hematologist 😅

Fra22-57 profile image
Fra22-57

Thankyou for posting this as I have been offered this operation and I am so afraid.I have never had an operation and when I get an injury I am very slow to heal.I also have fibromyalgia and rheumatoid arthritis etc and take lots of meds.After positive replies I will now go ahead with the op.I wish you well with yours

Anjdur profile image
Anjdur in reply to Fra22-57

Thank you and the same to you 😊

KellyInTexas profile image
KellyInTexasAdministrator in reply to Fra22-57

Wishing you a speedy recovery and a much better quality of life moving forward. ( hugs!)

Willow7733 profile image
Willow7733

I had one around three years ago. It was ok. They took precautions and it went well.

Anjdur profile image
Anjdur in reply to Willow7733

Glad to hear 😊

tiredmum profile image
tiredmum

I was on phenindione (very similar to warfarin). I had to come off of it about a week before and bridge with enoxaparin injections. I had nothing the day of the surgery, started injections and phenindione the day after. Once I was at my target inr stopped the injections. I had a bit of extra bruising but that was all. Best thing I ever did. Good luck x

Anjdur profile image
Anjdur in reply to tiredmum

Thank you so much 😊 I am so happy to hear that so many recommend the surgery 😅

KellyInTexas profile image
KellyInTexasAdministrator

just want to say, usually with APS the bridging plan might be slightly different than a “normal” warfarin patient. Make sure surgeon and hematologist are working together and have liased/ consulted with one another on your case regarding the surgery and bridging plan .

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