Triple Positive, High Titres, no even... - Hughes Syndrome A...

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Triple Positive, High Titres, no event yet. Prevention?

Poetryintranslation profile image

Hi all -

On the one hand, I feel very fortunate to know that I have the APL antibodies (just tested as persistent at 12 weeks) before anything dire has happened! On the other hand, being triple-positive at high levels and with bad chronic migraine including stroke-like symptoms makes me feel that I am probably at high risk for a clotting event. I have already been taking low-dose aspirin for years because of higher stroke risk due to migraine with aura. Is there anything else I can be doing in terms of prevention? My first hematologist appointment is in a month, anything in particular I should be asking?

Thanks. And thanks for being here.

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