Need help

[Erykah]

My name is Erykah I have lived with Lupus and APS for a long time. I also have several neuropathies. I have occasionally had a weird symptom when I pass water. It’s difficult to explain but sometimes I get this sensation in my hands like tingling or a very mild electric shock. It is very odd and I wondered if anyone else has this problem?

[lupus-support1 Administrator]

HI Erykah,

Have you had an urinary analysis recently? I suggest you see your doctor who may refer you to a urologist for investigation.

With best wishes,

Ros

[Lure2]

Dear Erykah, I understand this is your first asking for help or info but I also see you have been a member since 2013. Perhaps not only for APS then.....

APS is a difficult autoimmun illness to understand for all of us but especially for the Doctors.

So I do hope you have got a correct diagnosis and most important that you have got a Specialist of autoimmun illnesses like APS, SLE, Sjögrens m m as they often go hand in hands.

I have been here for a long time and live in Sweden and have had APS perhaps 20 years. Several Specialists we often need as this illness can get a lot of different symptoms from different organs. I have had symptoms from many organs but also from tiny nerves. Read about it so you learn and tell us a little more about yourself as it is easier to answer you in the future.

You had a very good answer from Lupus-Support1.

Take good care of yourself and Good Luck with the urinary analysis. You do not tell us how old you are.

[suntap]

Hi Erykah, I also have APS and neuropathy and have experienced what you are talking about. It's quite a weird feeling and I thought it was just me - weird. lol. I haven't actually asked my doctor about it yet, as I always have a long list of things to go through with her and run out or time before I get a chance. I will ask one day soon though. take care, Di.

[MaryF Administrator]

Hi, I hope your doctor will look into this for you, please be aware that with this disease often go other co factors such as Thyroid and B12 problems, which from my own and other people's experience are at times very badly managed in the UK. I did my own private Thyroid tests and B12 tests which showed I was deficient. It is still worth doing NHS tests as a starting point, and please do not take any supplement before testing or discussing with GP as it can very much alter the test result. For instance if you take a B12 supplement it can make your results high, and the test does not show how you are utilising it, only that it is in your system, if that makes sense. MaryF

[ste1000]

Yeah hands and feet tingle change colour white blue the red can be hands and feet vessels spasm aps rheynouds syndrome